UOC di Radioterapia Oncologica, Fatebenefratelli Isola Tiberina, Gemelli Isola, Rome, Italy.
UOC di Radioterapia Oncologica, Dipartimento Diagnostica per Immagini, Radioterapia Oncologica ed Ematologia, Fondazione Policlinico Universitario Agostino Gemelli IRCCS, Rome, Italy.
Front Public Health. 2023 Jan 23;11:1056307. doi: 10.3389/fpubh.2023.1056307. eCollection 2023.
Cancer diagnoses expose patients to traumatic stress, sudden changes in daily life, changes in the body and autonomy, with even long-term consequences, and in some cases, to come to terms with the end-of-life. Furthermore, rising survival rates underline that the need for interventions for emotional wellbeing is in growing demand by patients and survivors. Cancer patients frequently have compliance problems, difficulties during treatment, stress, or challenges in implementing healthy behaviors. This scenario was highlighted during the COVID-19 emergency. These issues often do not reach the clinical attention of dedicated professionals and could also become a source of stress or burnout for professionals. So, these consequences are evident on individual, interpersonal, and health system levels. Oncology services have increasingly sought to provide value-based health care, considering resources invested, with implications for service delivery and related financing mechanisms. Value-based health care can improve patient outcomes, often revealed by patient outcome measures while seeking balance with economical budgets. The paper aims to show the Gemelli Advanced Radiation Therapy (ART) experience of personalizing the patients' care pathway through interventions based on technologies and art, the personalized approach to cancer patients and their role as "co-stars" in treatment care. The paper describes the vision, experiences, and evidence that have guided clinical choices involving patients and professionals in a co-constructed therapeutic pathway. We will explore this approach by describing: the various initiatives already implemented and prospects, with particular attention to the economic sustainability of the paths proposed to patients; the several pathways of personalized care, both from the patient's and healthcare professional perspective, that put the person's experience at the Gemelli ART Center. The patient's satisfaction with the treatment and economic outcomes have been considered. The experiences and future perspectives described in the manuscript will focus on the value of people's experiences and patient satisfaction indicators, patients, staff, and the healthcare organization.
癌症诊断会使患者面临创伤性压力、日常生活的突然变化、身体和自主性的变化，甚至会产生长期后果，在某些情况下，还需要面对临终。此外，不断提高的生存率突显了患者和幸存者对干预情绪健康的需求不断增长。癌症患者经常存在遵医行为问题、治疗期间的困难、压力或在实施健康行为方面的挑战。在 COVID-19 紧急情况下，这种情况更加明显。这些问题通常没有引起专门专业人员的临床关注，也可能成为专业人员压力或倦怠的来源。因此，这些后果在个人、人际和卫生系统层面都很明显。肿瘤学服务越来越寻求提供基于价值的医疗保健，考虑到投入的资源，这对服务提供和相关融资机制都有影响。基于价值的医疗保健可以改善患者的预后，通常通过患者的结果测量来体现，同时寻求与经济预算的平衡。本文旨在展示 Gemelli 先进放疗 (ART) 通过基于技术和艺术的干预措施为患者的护理路径个性化的经验，即对癌症患者及其作为治疗护理“联合主演”的个性化方法。本文描述了指导涉及患者和专业人员的共同构建治疗途径的临床选择的愿景、经验和证据。我们将通过描述以下内容来探讨这种方法：已经实施的各种举措和前景，特别关注向患者提出的路径的经济可持续性；从患者和医疗保健专业人员的角度出发的个性化护理的多种途径，将个人的体验放在 Gemelli ART 中心。还考虑了患者对治疗的满意度和经济结果。本文档中描述的经验和未来展望将侧重于人员体验和患者满意度指标、患者、员工和医疗保健组织的价值。
