Matambanadzo Priscilla, Rhoda Anthea J
Department of Child and Family Studies, Faculty of Community and Health Sciences, University of the Western Cape, Bellville, South Africa.
Department of Physiotherapy, Faculty of Community and Health Sciences, University of the Western Cape, Bellville, South Africa.
S Afr J Physiother. 2024 Oct 25;80(1):2060. doi: 10.4102/sajp.v80i1.2060. eCollection 2024.
Caring for children with special needs places a burden on caregivers. The challenges experienced can be conceptualised as personal and environmental, as per the International Classification of Functioning, Disability and Health Framework (ICF).
Supported the caregiver experiences when caring for children with special needs and to conceptualise these needs in relation to the personal and environmental factors set out in the ICF.
A qualitative exploratory study was conducted, using purposive and snowball sampling. Semi-structured interviews were used to collect the data, which were then analysed thematically.
A total of six themes arose from the data. Two of these were related to personal factors: unemployment and caregiving, and marital uncertainty. The other four themes were related to environmental factors: family and caregiving factors, educational factors, health-systems challenges and perceptions of children with special needs.
Caregivers of children with special needs experienced personal challenges, which resulted in feelings of isolation from family and society. They also faced environmental challenges in sectors such as education and health.
The management of children with special needs should include interventions within their environments to assist caregivers with their tasks. This could contribute to improved quality of life for both the caregivers and their children.
照顾有特殊需求的儿童给照顾者带来了负担。根据《国际功能、残疾和健康分类框架》（ICF），所经历的挑战可被概念化为个人因素和环境因素。
支持照顾有特殊需求儿童的照顾者的经历，并根据ICF中列出的个人和环境因素对这些需求进行概念化。
采用立意抽样和滚雪球抽样进行了一项定性探索性研究。使用半结构化访谈收集数据，然后进行主题分析。
数据共产生了六个主题。其中两个与个人因素有关：失业与照顾以及婚姻不确定性。其他四个主题与环境因素有关：家庭与照顾因素、教育因素、卫生系统挑战以及对有特殊需求儿童的看法。
有特殊需求儿童的照顾者经历了个人挑战，这导致他们与家庭和社会隔绝。他们在教育和卫生等领域也面临环境挑战。
对有特殊需求儿童的管理应包括在其环境中进行干预，以协助照顾者完成任务。这有助于提高照顾者及其子女的生活质量。
