School of Medicine and Public Health, The University of Newcastle, Callaghan, New South Wales, Australia
Hunter Medical Research Institute, The University of Newcastle, New Lambton, New South Wales, Australia.
BMJ Open. 2023 Feb 10;13(2):e067054. doi: 10.1136/bmjopen-2022-067054.
Conducting ethical and high-quality health research is crucial for informing public health policy and service delivery to reduce the high and inequitable burden of disease experienced by Aboriginal and Torres Strait Islander people. Ethical guidelines and principles specifically for health research with Aboriginal and Torres Strait Islander people have been developed for use since 1987. However, there has been limited examination of how these are being applied to the conduct of research.
will be a large-scale national study to examine the implementation of ethical processes in Aboriginal and Torres Strait Islander health research. A mixed-methods design will be used in four (steps). The first three will collect knowledge, experiences and wisdom from three key groups: Aboriginal and Torres Strait Islander communities, research academics, and Human Research Ethics Committees using online surveys, yarning, and semistructured interviews. This knowledge will inform the final of developing a set of practical recommendations to support ethical conduct in Aboriginal and Torres Strait Islander health research into the future.
Ethical approval for this research project has been granted by National, State and Territory Human Research Ethics Committees. This research has been developed in collaboration with Aboriginal and Torres Strait Islander researchers, Aboriginal Community Controlled Health Organisation representatives, Aboriginal community members, the National Health Leadership Forum, and Aboriginal and Torres Strait Islander research team. The knowledge translation plan will be integrated and revised throughout the project as partnerships and engagement with Aboriginal and Torres Strait Islander communities continue. All findings will be shared with peak Aboriginal research bodies and Aboriginal and Torres Strait Islander communities in ways that are meaningful to them.
开展符合伦理道德且高质量的健康研究对于制定公共卫生政策和提供服务以减少原住民和托雷斯海峡岛民所面临的高且不平等的疾病负担至关重要。自 1987 年以来,已经制定了专门针对与原住民和托雷斯海峡岛民进行健康研究的伦理准则和原则,然而,对于这些准则和原则在研究实施中的应用情况,我们的了解还很有限。
这将是一项大规模的全国性研究,旨在检查在原住民和托雷斯海峡岛民健康研究中实施伦理程序的情况。该研究将采用混合方法设计,分四个步骤进行。前三个步骤将使用在线调查、座谈会和半结构化访谈,从三个关键群体收集知识、经验和智慧:原住民和托雷斯海峡岛民社区、研究学者以及人类研究伦理委员会。这些知识将为最终步骤提供信息,以制定一套实用建议,为未来的原住民和托雷斯海峡岛民健康研究中的伦理行为提供支持。
本研究项目已获得国家、州和地区人类研究伦理委员会的伦理批准。这项研究是与原住民和托雷斯海峡岛民研究人员、原住民社区控制的医疗组织代表、原住民社区成员、国家卫生领导力论坛以及原住民和托雷斯海峡岛民研究团队合作开展的。随着与原住民和托雷斯海峡岛民社区的合作关系不断发展和参与,知识转化计划将在整个项目中进行整合和修订。所有研究结果将以对原住民研究机构和原住民和托雷斯海峡岛民社区有意义的方式与他们分享。