Department of Community Health Sciences, Cumming School of Medicine, University of Calgary, Calgary, AB, Canada.
School of Public Policy, University of Calgary, Calgary, AB, Canada.
J Patient Rep Outcomes. 2023 Feb 14;7(1):14. doi: 10.1186/s41687-023-00556-0.
Patient-reported outcome measures (PROMs) are standardized and validated self-administered questionnaires that assess whether healthcare interventions and practices improve patients' health and quality of life. PROMs are commonly implemented in children and youth mental health services, as they increasingly emphasize patient-centered care. The objective of this study was to identify and describe the PROMs that are currently in use with children and youth living with mental health conditions (MHCs).
Three databases (MEDLINE, EMBASE, and PsycINFO) were systematically searched that used PROMs with children and youth < 18 years of age living with at least one diagnosed MHC. All methods were noted according to Preferred Reporting Items for Systematic reviews and Meta-Analysis. Four independent reviewers extracted data, which included study characteristics (country, year), setting, the type of MHC under investigation, how the PROMs were used, type of respondent, number of items, domain descriptors, and the psychometric properties.
Of the 5004 articles returned by the electronic search, 34 full-texts were included in this review. This review identified both generic and disease-specific PROMs, and of the 28 measures identified, 13 were generic, two were generic preference-based, and 13 were disease-specific.
This review shows there is a diverse array of PROMs used in children and youth living with MHCs. Integrating PROMs into the routine clinical care of youth living with MHCs could improve the mental health of youth. Further research on how relevant these PROMs are children and youth with mental health conditions will help establish more uniformity in the use of PROMs for this population.
患者报告的结果测量（PROMs）是经过标准化和验证的自我管理问卷，用于评估医疗干预和实践是否改善了患者的健康和生活质量。PROMs 在儿童和青少年心理健康服务中得到了广泛应用，因为它们越来越强调以患者为中心的护理。本研究的目的是确定和描述目前用于患有心理健康障碍（MHC）的儿童和青少年的 PROMs。
系统检索了三个数据库（MEDLINE、EMBASE 和 PsycINFO），使用了针对年龄<18 岁、患有至少一种已诊断 MHC 的儿童和青少年的 PROMs。所有方法均根据系统评价和荟萃分析的首选报告项目进行了记录。四名独立评审员提取了数据，包括研究特征（国家、年份）、设置、调查的 MHC 类型、PROMs 的使用方式、应答者类型、项目数量、领域描述符以及心理测量特性。
电子搜索返回的 5004 篇文章中，有 34 篇全文纳入了本综述。本综述确定了通用和疾病特异性的 PROMs，在确定的 28 种测量方法中，有 13 种是通用的，2 种是通用偏好的，13 种是疾病特异性的。
本综述表明，患有 MHC 的儿童和青少年使用的 PROMs 种类繁多。将 PROMs 纳入患有 MHC 的青少年的常规临床护理中可以改善青少年的心理健康。关于这些 PROMs 对患有心理健康障碍的儿童和青少年的相关性的进一步研究将有助于在该人群中使用 PROMs 建立更多的一致性。
