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患有夏科-马里-图思病(Charcot-Marie-Tooth disease)仍参与轮椅橄榄球联盟比赛:一项案例研究。

Playing Disability Rugby League with Charcot-Marie-Tooth Disease: A Case Study.

作者信息

Manny Luke, Wileman Taylor, Fornusek Che, Hackett Daniel A

机构信息

Disciple of Exercise and Sport Science, Sydney School of Health Sciences, Faculty of Medicine and Health, The University of Sydney, Sydney 2006, Australia.

出版信息

Sports (Basel). 2023 Jan 18;11(2):21. doi: 10.3390/sports11020021.

Abstract

Charcot-Marie-Tooth (CMT) disease is a common inherited neurological disorder that causes damage to peripheral nerves. Reports of CMT patients participating in team-based sports such as disability rugby league are scarce. The objective of this case report was to evaluate the benefits of participation in disability rugby league in a 50-year-old male with CMT. Leg muscle mass and strength was worse for the case subject compared to two age-matched CMT participants with an exercise history; however, evidence of greater function in the case subject was observed through better 6-min walk test performance. Performance in a series of sport specific tests was noticeably worse for the case subject compared to a fellow rugby league player (age matched) with cerebral palsy. Inferior in-game performance was observed for the case subject compared to his fellow rugby league player in terms of distance covered, top running speed, and intensity. However, the case subject may have assumed a different role when playing as evident by the different behaviours he displayed during the games (i.e., less player contacts, tackles, or touches, but more passes of the ball). This case study provides information concerning disability rugby league as an adjunctive mode of treatment for CMT populations.

摘要

夏科-马里-图思(CMT)病是一种常见的遗传性神经疾病,会损害周围神经。关于CMT患者参与诸如残疾人橄榄球联盟等团队运动的报道很少。本病例报告的目的是评估一名50岁CMT男性患者参与残疾人橄榄球联盟的益处。与两名有运动史的年龄匹配的CMT参与者相比,该病例受试者的腿部肌肉质量和力量较差;然而,通过更好的6分钟步行试验表现,观察到该病例受试者有更良好功能的证据。与一名患有脑瘫的年龄匹配的橄榄球联盟球员相比,该病例受试者在一系列特定运动测试中的表现明显更差。在比赛中,该病例受试者在覆盖距离、最高奔跑速度和强度方面的表现不如他的橄榄球联盟队友。然而,该病例受试者在比赛中可能扮演了不同的角色,这从他在比赛中表现出的不同行为中可以明显看出(即较少的球员接触、擒抱或触碰,但更多的传球)。本病例研究提供了关于残疾人橄榄球联盟作为CMT人群辅助治疗方式的信息。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bf13/9964179/13d1722c3a6a/sports-11-00021-g001.jpg

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