Rfat Mustafa, Koçak Orhan, Uzun Büşra
Washington University, St. Louis, USA.
Social Work Department, Istanbul University, Istanbul, Turkey.
Glob Soc Welf. 2023 Feb 23:1-10. doi: 10.1007/s40609-023-00270-1.
This qualitative research study examines problems experienced by families with children who have received a diagnosis of autism spectrum disorder (ASD) living in Turkey.
In recent years, Turkey has moved to expand services to children who have received a diagnosis of ASD and their families. However, families still experience hidden issues that are crucial to consider while developing appropriate policies.
In this study, we interviewed 10 families whose children attended special education schools in the Bağcılar and Bahçelievler districts of Istanbul. We used semistructured interviews conducted via phone, WhatsApp video chat, and Zoom and a phenomenological approach to gain an in-depth understanding of the caregivers' experience. Themes were obtained by utilizing descriptive analysis.
Parents expressed a variety of concerns including financial burden, intrafamilial conflict, mental health problems, and community-related issues.
Moving forward, the emerging social work profession should assist children who have been given a diagnosis of ASD and their parents in accessing mental and behavioral health and community-level resources, especially mothers, as they often bear the most responsibilities in Turkey.
这项定性研究考察了在土耳其生活的、其子女被诊断患有自闭症谱系障碍（ASD）的家庭所面临的问题。
近年来，土耳其已着手扩大为被诊断患有ASD的儿童及其家庭提供的服务。然而，在制定适当政策时，家庭仍然面临一些需要重点考虑的潜在问题。
在本研究中，我们采访了10个家庭，这些家庭的孩子在伊斯坦布尔的巴伊cılar和巴赫çelievler区的特殊教育学校就读。我们通过电话、WhatsApp视频聊天和Zoom进行半结构化访谈，并采用现象学方法深入了解照顾者的经历。通过描述性分析得出主题。
家长们表达了各种担忧，包括经济负担、家庭内部冲突、心理健康问题以及与社区相关的问题。
展望未来，新兴的社会工作专业应协助被诊断患有ASD的儿童及其父母获取心理和行为健康以及社区层面的资源，尤其是母亲，因为在土耳其她们往往承担着最大的责任。
