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一项针对自闭症儿童家长的家长赋权计划的有效性:一项随机对照试验。

Effectiveness of a Parent Empowerment Program for Parents of Children with Autism: A Randomized Controlled Trial.

作者信息

Şahin Büyük Damla, Özmen Dilek

机构信息

Dept. of Public Health Nursing, Faculty of Health Sciences, Manisa Celal Bayar University, Manisa, Türkiye.

出版信息

Child Care Health Dev. 2025 Sep;51(5):e70148. doi: 10.1111/cch.70148.

DOI:10.1111/cch.70148
PMID:40751565
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12317650/
Abstract

BACKGROUND

Parents of children with autism often face significant stress, low self-efficacy, and caregiver burden in meeting their children's complex needs. This study evaluated the effectiveness of a parent empowerment program combining parental training and motivational interviewing to support caregivers of children with autism in Türkiye.

METHODS

A total of 69 parents (intervention = 34, control = 35) participated in this unblinded, two-group randomized controlled study, which was conducted between September 2020 and May 2022. A parent empowerment program, including four parental training sessions and two motivational interview sessions, was applied to the parents in the intervention group. The Parental Self-Efficacy Scale, Zarit Care Burden Scale, Perceived Stress Scale and Family Empowerment Scale were used to evaluate the effectiveness of the empowerment program. Standard practice was performed for the control group.

RESULTS

Parents in the intervention group showed significantly greater improvements than those in the control group in self-efficacy (t = 5.340, p < 0.001), perceived stress (t = -4.636, p < 0.001) and family empowerment (t = 2.745, p = 0.008). No significant difference was observed between the groups in caregiver burden (p = 0.086).

CONCLUSION

This study reveals that using a parent empowerment program that includes motivational interviews along with training interventions is effective in empowering parents to manage their children's care, reducing stress, and supporting them to acquire effective parenting skills by increasing self-efficacy. Future research should explore designs that assess the independent and combined effects of motivational interviews and parent training programmes in randomised controlled trials. The study was registered at ClinicalTrials.gov (https://clinicaltrials.gov/) under the registration number NCT06629974 on October 8, 2024.

摘要

背景

自闭症儿童的父母在满足孩子复杂需求时,常常面临巨大压力、自我效能感低以及照顾者负担。本研究评估了一项将家长培训与动机性访谈相结合的家长赋权项目,以支持土耳其自闭症儿童照顾者的效果。

方法

共有69名家长(干预组 = 34名,对照组 = 35名)参与了这项非盲法、两组随机对照研究,研究于2020年9月至2022年5月进行。一项家长赋权项目,包括四次家长培训课程和两次动机性访谈课程,应用于干预组的家长。使用家长自我效能量表、扎里特照顾负担量表、感知压力量表和家庭赋权量表来评估赋权项目的效果。对照组采用标准做法。

结果

干预组家长在自我效能感(t = 5.340,p < 0.001)、感知压力(t = -4.636,p < 0.001)和家庭赋权(t = 2.745,p = 0.008)方面的改善显著大于对照组。两组在照顾者负担方面未观察到显著差异(p = 0.086)。

结论

本研究表明,使用包括动机性访谈以及培训干预的家长赋权项目,在使家长有能力管理孩子的照料、减轻压力以及通过提高自我效能感支持他们获得有效的育儿技能方面是有效的。未来的研究应探索在随机对照试验中评估动机性访谈和家长培训项目的独立及联合效果的设计。该研究于2024年10月8日在ClinicalTrials.gov(https://clinicaltrials.gov/)注册,注册号为NCT06629974。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a869/12317650/c1f61eabcc06/CCH-51-e70148-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a869/12317650/594b6a65b771/CCH-51-e70148-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a869/12317650/c1f61eabcc06/CCH-51-e70148-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a869/12317650/594b6a65b771/CCH-51-e70148-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a869/12317650/c1f61eabcc06/CCH-51-e70148-g001.jpg

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