Spinal Research Institute, Melbourne, Victoria, Australia.
Spinal Cord. 2023 May;61(5):285-287. doi: 10.1038/s41393-023-00888-0. Epub 2023 Mar 10.
To ensure that research outcomes are relevant and meet the needs of the spinal cord jury (SCI) community, it is essential that people with lived experience of SCI ('consumers') are actively involved in all stages of the research process. One of the goals of the Spinal Research Institute (SRI) ( www.thesri.org ) is to facilitate this active engagement of consumers in research. In order to support consumer involvement, appropriate resources, including remuneration, need to be in place. This paper sets out the process undertaken by the SRI to develop a Policy for Consumer Remuneration. It addresses the rationale for creating a policy, the resources used and shares the model that defines the levels of consumer engagement and associated remuneration. The SRI Policy for Consumer Remuneration sets a standard for the SCI research field, which can serve as a model for Australia and as a template for other countries.
为确保研究成果具有相关性并满足脊髓损伤陪审团（SCI）社区的需求，让有脊髓损伤生活经历的人（“消费者”）积极参与研究过程的各个阶段至关重要。脊髓研究所以（www.thesri.org）的目标之一是促进消费者在研究中的这种积极参与。为了支持消费者的参与，需要有适当的资源，包括报酬。本文阐述了脊髓研究所制定消费者报酬政策所经历的过程。它解决了制定政策的基本原理、所使用的资源，并分享了定义消费者参与程度和相关报酬的模式。脊髓研究所消费者报酬政策为 SCI 研究领域设定了一个标准，可为澳大利亚提供一个范例，并为其他国家提供一个模板。
