German Center for Neurodegenerative Diseases (DZNE), Venusberg-Campus 1, D-53127, Bonn, Germany.
Department of Neurology, University Hospital Bonn, Bonn, Germany.
Cerebellum. 2024 Jun;23(3):877-880. doi: 10.1007/s12311-023-01543-3. Epub 2023 Mar 15.
Monitoring of disease severity is of great importance for treatment and management of clinical trials. The Scale for Assessment and Rating of Ataxia (SARA) is a frequently used, short and easily applicable clinical scale used to assess the severity of ataxia. The objective of our study was to develop a training and certification tool for the SARA. SARA scores were recorded according to a standardized protocol and rated by three clinical experts in consensus. Four hundred thirty-eight videos of 67 patients were included in the SARA training tool. The tutorial section demonstrates a complete SARA examination on a healthy control. In the training section, users can compare their ratings to consensus ratings and access a video library covering the complete SARA range. The tool also includes a section that allows optional certification. The SARA training tool provides comprehensive and standardized training material and certification to reduce variability in applying the SARA. Standardization aims to improve the quality of patient care and research in ataxia.
疾病严重程度的监测对于临床研究的治疗和管理非常重要。共济失调评估和分级量表（SARA）是一种常用的、简短且易于应用的临床量表，用于评估共济失调的严重程度。我们研究的目的是开发一种 SARA 的培训和认证工具。SARA 评分根据标准化方案记录，并由三位临床专家进行共识评分。该 SARA 培训工具共纳入了 67 名患者的 438 个视频。教程部分展示了对健康对照者进行完整的 SARA 检查。在培训部分，用户可以将他们的评分与共识评分进行比较，并访问涵盖完整 SARA 范围的视频库。该工具还包括一个允许可选认证的部分。SARA 培训工具提供全面和标准化的培训材料和认证，以减少应用 SARA 的变异性。标准化旨在提高共济失调患者护理和研究的质量。
