Thomas Missy, Henderson Dean, Trudel Chantal, Thomas Neil
School of Industrial Design, Department of Engineering and Design, Carleton University, Ottawa, ON, Canada.
Bruyère Research Institute, Ottawa, ON, Canada.
JMIR Aging. 2023 Apr 20;6:e40762. doi: 10.2196/40762.
Many individuals living with dementia want to live in their own homes for as long as possible. To do so, they frequently require assistance with activities of daily living, which is often provided by friends and relatives acting as informal care partners. In Canada, many informal care partners are currently overworked and overwhelmed. Although community-based dementia-inclusive resources are available to support them, care partners often struggle to find them. Dementia613.ca was created to make the process of finding community dementia-inclusive resources simpler and more straightforward by bringing them together in one eHealth website.
The objective of our study was to determine if dementia613.ca is meeting the goal of connecting care partners and persons living with dementia to dementia-inclusive resources in their community.
A review and assessment of the website was conducted using 3 evaluation methods: web analytics, questionnaires, and task analysis. Google Analytics was used to collect data related to website use over a 9-month period. Data on site content and user characteristics were collected. Furthermore, 2 web-based self-administered questionnaires were developed: one intended for care partners and persons living with dementia, and the other intended for businesses and organizations interested in serving persons living with dementia. Both gathered data on user characteristics and included standard questions used in website evaluations. Responses were collected over a 6-month period. Scenarios, tasks, and questions were developed for the moderated, remote, and task-analysis sessions. These tasks and questions determined how effectively persons living with dementia and their care partners can use dementia613.ca. Overall, 5 sessions were held with persons experiencing moderate cognitive decline and with care partners of persons living with dementia.
This evaluation showed that the idea behind dementia613.ca is strong and appeals to persons living with dementia, their care partners, and the businesses and organizations serving this market. Participants indicated that it is a useful community resource that meets a previously unfulfilled need in the area, and highlighted the benefits of bringing community resources together on 1 website. In our questionnaire, >60% (19/29, 66%) of people living with dementia and their care partners and 70% (7/10) of businesses and organizations agreed that the website made it easier to find relevant dementia-inclusive resources. There is room for improvement; participants indicated that the navigation and search features could be further developed.
We believe that the dementia613.ca model could be used to inspire and guide the creation of dementia resource websites in other regions in Ontario and beyond. The framework behind it is generalizable and could be replicated to help care partners and persons living with dementia find local resources more easily.
许多痴呆症患者希望尽可能长时间地住在自己家中。为此，他们经常需要在日常生活活动方面得到帮助，而这种帮助通常由作为非正式护理伙伴的朋友和亲属提供。在加拿大，许多非正式护理伙伴目前工作过度且不堪重负。尽管有基于社区的痴呆症包容性资源可用于支持他们，但护理伙伴往往难以找到这些资源。创建dementia613.ca网站的目的是通过将这些资源整合在一个电子健康网站上，使寻找社区痴呆症包容性资源的过程更简单、更直接。
我们研究的目的是确定dementia613.ca网站是否实现了将护理伙伴和痴呆症患者与他们社区中的痴呆症包容性资源相连接的目标。
使用三种评估方法对该网站进行审查和评估：网络分析、问卷调查和任务分析。使用谷歌分析收集9个月期间与网站使用相关的数据。收集有关网站内容和用户特征的数据。此外，还开发了两份基于网络的自填式问卷：一份面向护理伙伴和痴呆症患者，另一份面向有兴趣为痴呆症患者服务的企业和组织。两份问卷都收集了用户特征数据，并包括网站评估中使用的标准问题。在6个月的时间内收集了回复。为主持的、远程的和任务分析会议制定了情景、任务和问题。这些任务和问题确定了痴呆症患者及其护理伙伴使用dementia613.ca网站的有效程度。总体而言，与中度认知能力下降的患者以及痴呆症患者的护理伙伴举行了5次会议。
本次评估表明，dementia613.ca网站背后的理念很强大，对痴呆症患者、他们的护理伙伴以及服务于这个市场的企业和组织具有吸引力。参与者表示，它是一个有用的社区资源，满足了该领域以前未得到满足的需求，并强调了将社区资源整合在一个网站上的好处。在我们的问卷中，超过60%（19/29，66%）的痴呆症患者及其护理伙伴以及70%（7/10）的企业和组织同意该网站使查找相关的痴呆症包容性资源变得更容易。仍有改进的空间；参与者表示，导航和搜索功能可以进一步开发。
我们认为，dementia6业和组织同意该网站使查找相关的痴呆症包容性资源变得更容易。仍有改进的空间；参与者表示，导航和搜索功能可以进一步开发。
我们认为，dementia613.ca模式可用于启发和指导安大略省及其他地区创建痴呆症资源网站。其背后的框架具有通用性，可以复制，以帮助护理伙伴和痴呆症患者更轻松地找到当地资源。
