Oskarsson Jennie, Myleus Anna, Mårild Karl
From the Bräcke Diakoni outpatient clinic, Alingsås, Sweden.
Department of Public Health and Clinical Medicine, Family Medicine, Umeå University, Umeå, Sweden.
JPGN Rep. 2022 Mar 17;3(2):e191. doi: 10.1097/PG9.0000000000000191. eCollection 2022 May.
Coeliac disease (CD) is one of the most common chronic diseases of childhood. Follow-up of CD aims to ensure dietary adherence and prevent disease complications, but there are few real-world data on how its management in children is conducted. This study aimed to survey the follow-up practice of pediatric CD in Western Sweden. Two web-based surveys were distributed to all 22 pediatric outpatient clinics rendering answers from 48 physicians and 12 dietitians. Overall, clinical practice was similar throughout the region and in line with national and international CD guidelines, including an annual to biannually follow-up frequency and dietary adherence assessment through unstructured interviewing and serology measurements. The study identified possible areas of improvement, such as implementing a formal transition process to adult care and the use of validated questionaries to assess dietary adherence. Additionally, a positive attitude towards electronic-health technologies (eHealth) as part of CD follow-up was identified.
乳糜泻（CD）是儿童期最常见的慢性病之一。乳糜泻的随访旨在确保饮食依从性并预防疾病并发症，但关于儿童乳糜泻管理方式的真实世界数据却很少。本研究旨在调查瑞典西部儿科乳糜泻的随访实践情况。两项基于网络的调查问卷被分发给了所有22家儿科门诊诊所，收到了48位医生和12位营养师的回复。总体而言，该地区的临床实践情况相似，且符合国家和国际乳糜泻指南，包括每年至每两年一次的随访频率以及通过非结构化访谈和血清学检测进行饮食依从性评估。该研究确定了可能需要改进的领域，例如实施向成人护理的正式过渡流程以及使用经过验证的问卷来评估饮食依从性。此外，研究还发现了对将电子健康技术（eHealth）作为乳糜泻随访一部分的积极态度。
