Department of Neurology, Danish Headache Center, Copenhagen University Hospital - Rigshospitalet, Copenhagen, Denmark.
Danish Knowledge Center on Headache Disorders, Glostrup, Denmark.
BMC Neurol. 2023 May 17;23(1):194. doi: 10.1186/s12883-023-03196-5.
Most individuals with access to the internet use social media platforms. These platforms represent an excellent opportunity to disseminate knowledge about management and treatment to the benefit of patients. The International Headache Society, The European Headache Federation, and The American Headache Society have electronic media committees to promote and highlight the organizations' expertise and disseminate research findings. A growing mistrust in science has made dealing with infodemics (i.e., sudden access to excessive unvetted information) an increasing part of clinical management. An increasing role of these committees will be to address this challenge. As an example, recent studies have demonstrated that the most popular online content on migraine management is not evidence-based and is disseminated by for-profit organizations. As healthcare professionals and members of professional headache organizations, we are obliged to prioritize knowledge dissemination. A progressive social media strategy is associated not only with increased online visibility and outreach, but also with a higher scientific interest. To identify gaps and barriers, future research should assess the range of available information on headache disorders in electronic media, characterize direct and indirect consequences on clinical management, and recognize best practice and strategies to improve our communication on internet-based communication platforms. In turn, these efforts will reduce the burden of headache disorders by facilitating improved education of both patients and providers.
大多数能够访问互联网的人都使用社交媒体平台。这些平台为向患者传播管理和治疗知识提供了极好的机会。国际头痛学会、欧洲头痛联合会和美国头痛学会都有电子媒体委员会,以促进和突出组织的专业知识并传播研究成果。人们对科学的信任度不断下降,使得应对信息疫情(即突然获得大量未经审查的信息)成为临床管理越来越重要的一部分。这些委员会的作用将会越来越大。例如,最近的研究表明,关于偏头痛管理的最受欢迎的在线内容不是基于证据的,而是由营利性组织传播的。作为医疗保健专业人员和专业头痛组织的成员,我们有义务优先传播知识。制定渐进的社交媒体战略不仅与提高在线知名度和影响力有关,而且与提高科学关注度有关。为了确定差距和障碍,未来的研究应该评估电子媒体中关于头痛疾病的可用信息范围,描述对临床管理的直接和间接影响,并认识到改善我们在基于互联网的交流平台上的沟通的最佳实践和策略。反过来,这些努力将通过促进对患者和提供者的更好教育来减轻头痛疾病的负担。