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本文引用的文献

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Characterizing healthcare utilization patterns in a Danish population with headache: results from the nationwide headache in Denmark (HINDER) panel.描述丹麦头痛人群的医疗利用模式:来自丹麦全国头痛研究(HINDER)小组的结果。
J Headache Pain. 2023 Feb 24;24(1):18. doi: 10.1186/s10194-023-01553-w.
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One-quarter of individuals with weekly headache have never consulted a medical doctor: a Danish nationwide cross-sectional survey.四分之一每周头痛的人从未咨询过医生:一项丹麦全国性横断面调查。
J Headache Pain. 2022 Jul 18;23(1):84. doi: 10.1186/s10194-022-01460-6.
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Patients' and Health Care Workers' Perception of Migraine Images on the Internet: Cross-sectional Survey Study.患者和医疗保健工作者对互联网上偏头痛图像的认知:横断面调查研究。
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Manual joint mobilisation techniques, supervised physical activity, psychological treatment, acupuncture and patient education for patients with tension-type headache. A systematic review and meta-analysis.手法关节松动术、监督下的身体活动、心理治疗、针刺和患者教育用于紧张型头痛患者。系统评价和荟萃分析。
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Manual joint mobilisation techniques, supervised physical activity, psychological treatment, acupuncture and patient education in migraine treatment. A systematic review and meta-analysis.偏头痛治疗中的手法关节松动技术、有监督的体育活动、心理治疗、针灸及患者教育。一项系统评价与荟萃分析。
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The American Headache Society Consensus Statement: Update on integrating new migraine treatments into clinical practice.美国头痛学会共识声明:更新将新的偏头痛治疗方法整合到临床实践中的建议。
Headache. 2021 Jul;61(7):1021-1039. doi: 10.1111/head.14153. Epub 2021 Jun 23.
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Diagnosis and management of migraine in ten steps.偏头痛的诊断与管理十步骤。
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Reference programme: diagnosis and treatment of headache disorders and facial pain. Danish Headache Society, 3rd edition, 2020.参考项目:头痛障碍和面部疼痛的诊断和治疗。丹麦头痛学会,第三版,2020 年。
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Migraine: epidemiology and systems of care.偏头痛:流行病学和照护体系。
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电子媒体在头痛中的作用日益增加。

The increasing role of electronic media in headache.

机构信息

Department of Neurology, Danish Headache Center, Copenhagen University Hospital - Rigshospitalet, Copenhagen, Denmark.

Danish Knowledge Center on Headache Disorders, Glostrup, Denmark.

出版信息

BMC Neurol. 2023 May 17;23(1):194. doi: 10.1186/s12883-023-03196-5.

DOI:10.1186/s12883-023-03196-5
PMID:37198539
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10189219/
Abstract

Most individuals with access to the internet use social media platforms. These platforms represent an excellent opportunity to disseminate knowledge about management and treatment to the benefit of patients. The International Headache Society, The European Headache Federation, and The American Headache Society have electronic media committees to promote and highlight the organizations' expertise and disseminate research findings. A growing mistrust in science has made dealing with infodemics (i.e., sudden access to excessive unvetted information) an increasing part of clinical management. An increasing role of these committees will be to address this challenge. As an example, recent studies have demonstrated that the most popular online content on migraine management is not evidence-based and is disseminated by for-profit organizations. As healthcare professionals and members of professional headache organizations, we are obliged to prioritize knowledge dissemination. A progressive social media strategy is associated not only with increased online visibility and outreach, but also with a higher scientific interest. To identify gaps and barriers, future research should assess the range of available information on headache disorders in electronic media, characterize direct and indirect consequences on clinical management, and recognize best practice and strategies to improve our communication on internet-based communication platforms. In turn, these efforts will reduce the burden of headache disorders by facilitating improved education of both patients and providers.

摘要

大多数能够访问互联网的人都使用社交媒体平台。这些平台为向患者传播管理和治疗知识提供了极好的机会。国际头痛学会、欧洲头痛联合会和美国头痛学会都有电子媒体委员会,以促进和突出组织的专业知识并传播研究成果。人们对科学的信任度不断下降,使得应对信息疫情(即突然获得大量未经审查的信息)成为临床管理越来越重要的一部分。这些委员会的作用将会越来越大。例如,最近的研究表明,关于偏头痛管理的最受欢迎的在线内容不是基于证据的,而是由营利性组织传播的。作为医疗保健专业人员和专业头痛组织的成员,我们有义务优先传播知识。制定渐进的社交媒体战略不仅与提高在线知名度和影响力有关,而且与提高科学关注度有关。为了确定差距和障碍,未来的研究应该评估电子媒体中关于头痛疾病的可用信息范围,描述对临床管理的直接和间接影响,并认识到改善我们在基于互联网的交流平台上的沟通的最佳实践和策略。反过来,这些努力将通过促进对患者和提供者的更好教育来减轻头痛疾病的负担。