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作为实现权利手段的生活质量支持模式

The Quality of Life Supports Model as a Vehicle for Implementing Rights.

作者信息

Morán Lucía, Gómez Laura E, Verdugo Miguel Ángel, Schalock Robert L

机构信息

Department of Psychology, University of Oviedo, 33003 Oviedo, Spain.

Institute on Community Integration (INICO) and Department of Personality, Assessment and Psychological Treatments, University of Salamanca, 37005 Salamanca, Spain.

出版信息

Behav Sci (Basel). 2023 Apr 28;13(5):365. doi: 10.3390/bs13050365.

DOI:10.3390/bs13050365
PMID:37232602
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10215343/
Abstract

The Quality of Life Supports Model (QOLSM) is emerging as a new framework that is applicable to people with disabilities in general, but specially to people with intellectual and developmental disabilities (IDD). The aim of this conceptual paper is twofold. Firstly, it aims to show the overlap between the QOLSM and the Convention on the Rights of People with Disabilities (CRPD), highlighting how the former can be used to address many of the goals and rights embedded in the latter. Secondly, the article seeks to illustrate the connection between these two frameworks and highlight the importance of acknowledging and measuring the rights of people with IDD. Therefore, we posit that the new #Rights4MeToo scale is ideal for: (a) providing accessible means and opportunities for people with IDD to identify and communicate their needs regarding their rights; (b) enhancing the supports and services that families and professionals provide to them; and (c) guiding organizations and policies to identify strengths and needs in relation to rights and quality of life. We also discuss future research needs and summarize the main findings of this article, highlighting its implications for practice and research.

摘要

生活质量支持模型(QOLSM)正在成为一个新的框架,它一般适用于残疾人,特别是适用于智力和发育障碍者(IDD)。这篇概念性论文有两个目的。首先,它旨在展示生活质量支持模型与《残疾人权利公约》(CRPD)之间的重叠之处,强调前者如何能够用于实现后者所包含的许多目标和权利。其次,本文试图阐明这两个框架之间的联系,并强调承认和衡量智力和发育障碍者权利的重要性。因此,我们认为新的“#我也是权利”量表非常适合:(a)为智力和发育障碍者提供易于理解的方式和机会,以确定并传达他们在权利方面的需求;(b)加强家庭和专业人员为他们提供的支持与服务;(c)指导组织和政策确定与权利及生活质量相关的优势和需求。我们还讨论了未来的研究需求,并总结了本文的主要发现,强调了其对实践和研究的启示。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e500/10215343/af1dc31cb147/behavsci-13-00365-g003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e500/10215343/98b262af1120/behavsci-13-00365-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e500/10215343/88724e69d3ce/behavsci-13-00365-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e500/10215343/af1dc31cb147/behavsci-13-00365-g003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e500/10215343/98b262af1120/behavsci-13-00365-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e500/10215343/88724e69d3ce/behavsci-13-00365-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e500/10215343/af1dc31cb147/behavsci-13-00365-g003.jpg

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本文引用的文献

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Int J Dev Disabil. 2021 Aug 20;69(2):317-326. doi: 10.1080/20473869.2021.1965826. eCollection 2023.
2
The Right to Sexuality, Reproductive Health, and Found a Family for People with Intellectual Disability: A Systematic Review.《论智力残疾者的性权利、生殖健康和组建家庭的权利:系统评价》。
Int J Environ Res Public Health. 2023 Jan 15;20(2):1587. doi: 10.3390/ijerph20021587.
3
智力障碍者的身体活动与生活质量:性别角色与实践特征
Behav Sci (Basel). 2023 Sep 15;13(9):773. doi: 10.3390/bs13090773.
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The IDD Paradigm of Shared Citizenship: Its Operationalization, Application, Evaluation, and Shaping for the Future.共享公民身份的身份发展差异范式:其运作、应用、评估及未来塑造。
Intellect Dev Disabil. 2022 Oct 1;60(5):426-443. doi: 10.1352/1934-9556-60.5.426.
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