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影片作为合作努力:为痴呆症患者、他们的亲属、护理人员和老年护理人员带来的希望。

Film as cooperative endeavour: The promises for people living with dementia, their relatives, caregivers and aged care staff.

机构信息

University of Tasmania, Hobart, AU-TAS, Australia.

出版信息

Dementia (London). 2023 Oct;22(7):1440-1460. doi: 10.1177/14713012231183394. Epub 2023 Jun 9.

Abstract

Creative expression by people living with dementia and their families and carers can improve communication and relationships and strengthen relational personhood. The transition to residential aged care from living at home with dementia is a time of 'relocation stress", and a time when additional psychosocial supports like these might be particularly beneficial. This article reports on a qualitative study that explored how a co-operative filmmaking project functioned as a multifaceted psychosocial intervention, and explored its potential impacts on relocation stressors. Methods included interviews with people living with dementia who were involved in the filmmaking, and their families and close others. Staff from a local day centre and residential aged care home also took part in interviews, as did the filmmakers. The researchers also observed some of the filmmaking process. Reflexive thematic analysis techniques were used to generate three key themes in the data: Relationship building; Communicating agency, memento and heart; Being visible and inclusive. The findings reveal challenges regarding privacy and the ethics of public screenings, as well as the pragmatics of using short films as a communication tool in aged care settings. We conclude that filmmaking as a cooperative endeavour holds promise to mitigate relocation stressors by: improving family and other relationships during challenging times for family and for people living with dementia; providing opportunities for new self-narratives derived from relational subjectivities; supporting visibility and personhood; and improving communication once in residential aged care. This research has relevance for communities who are looking to support dynamic personhood and improve the care of people living with dementia.

摘要

患有痴呆症的患者及其家人和护理人员的创造性表达可以改善沟通和人际关系,并增强关系人格。从家中患有痴呆症过渡到入住养老院是一个“重新安置压力”的时期,此时可能特别需要额外的心理社会支持,如这些支持。本文报告了一项定性研究,该研究探讨了合作电影制作项目如何作为一种多方面的心理社会干预措施发挥作用,并探讨了其对重新安置压力源的潜在影响。研究方法包括对参与电影制作的痴呆症患者及其家人和亲近的人进行访谈。当地日间护理中心和养老院的工作人员以及电影制作人也参加了访谈。研究人员还观察了一些电影制作过程。使用反思性主题分析技术对数据生成了三个关键主题:关系建设;沟通代理、纪念品和心;可见性和包容性。研究结果揭示了与隐私和公开放映的伦理道德相关的挑战,以及在养老院环境中使用短片作为沟通工具的实用性问题。我们的结论是,合作制作电影具有减轻重新安置压力的潜力,其方法是:在家庭和痴呆症患者面临挑战的时期改善家庭和其他关系;为从关系主体中衍生出的新的自我叙述提供机会;支持可见性和人格;并改善入住养老院后的沟通。这项研究与希望支持动态人格和改善痴呆症患者护理的社区有关。

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