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本文引用的文献

1
Prevalence and correlates of invitation to participate in clinical trials among US adults.美国成年人参与临床试验邀请的患病率及其相关因素。
Prev Med Rep. 2022 Feb 22;26:101742. doi: 10.1016/j.pmedr.2022.101742. eCollection 2022 Apr.
2
Patients' experiences of the decision-making process for clinical trial participation.患者参与临床试验决策过程的体验。
Nurs Health Sci. 2022 Mar;24(1):65-72. doi: 10.1111/nhs.12933. Epub 2022 Mar 21.
3
Correlates of knowledge of clinical trials among U.S. adults: Findings from the 2020 Health Information National Trends Survey.美国成年人临床试验知识的相关因素:2020年健康信息国家趋势调查结果
Contemp Clin Trials. 2022 Mar;114:106676. doi: 10.1016/j.cct.2022.106676. Epub 2022 Jan 10.
4
Demographic and Health Behavior Factors Associated With Clinical Trial Invitation and Participation in the United States.与临床试验邀请和参与相关的人口统计学和健康行为因素。
JAMA Netw Open. 2021 Sep 1;4(9):e2127792. doi: 10.1001/jamanetworkopen.2021.27792.
5
Recruitment of African Americans into Cancer Clinical Research: Strategies and Outcomes.非裔美国人参与癌症临床研究的招募:策略与结果。
J Urban Health. 2021 Oct;98(Suppl 2):149-154. doi: 10.1007/s11524-021-00565-8. Epub 2021 Aug 9.
6
A pilot study of a culturally-appropriate, educational intervention to increase participation in cancer clinical trials among African Americans and Latinos.一项针对非裔美国人和拉丁裔人群、旨在增加其参与癌症临床试验的文化适宜性教育干预的初步研究。
Cancer Causes Control. 2021 Sep;32(9):953-963. doi: 10.1007/s10552-021-01449-7. Epub 2021 May 27.
7
Recruitment and Retention of Women Living With HIV for Clinical Research: A Review.招募和留住感染艾滋病毒的女性参与临床研究:综述。
AIDS Behav. 2021 Oct;25(10):3267-3278. doi: 10.1007/s10461-021-03273-1. Epub 2021 May 14.
8
Transparency, trust and minimizing burden to increase recruitment and retention in trials: a systematic review.提高试验招募和保留率的透明度、信任和最小负担:系统评价。
J Clin Epidemiol. 2021 Jun;134:35-51. doi: 10.1016/j.jclinepi.2021.01.014. Epub 2021 Jan 27.
9
Learning from Black/African American Participants: Applying the Integrated Behavioral Model to Assess Recruitment Strategies for a Glaucoma Genetic Study.从非裔美国人参与者身上学习:应用综合行为模型评估青光眼遗传研究的招募策略。
Health Commun. 2022 Apr;37(4):515-524. doi: 10.1080/10410236.2020.1853897. Epub 2020 Dec 19.
10
Caring in the recruitment of older African American adults with chronic health disease: An integrative review.关怀招募患有慢性健康疾病的老年非裔美国成年人:综合评价。
Chronic Illn. 2021 Dec;17(4):323-346. doi: 10.1177/1742395320905666. Epub 2020 Feb 25.

感知专业知识和可信度在研究和临床试验招募中的作用:临床研究协调员和非裔美国人和加勒比黑人患者的观点。

The role of perceived expertise and trustworthiness in research study and clinical trial recruitment: Perspectives of clinical research coordinators and African American and Black Caribbean patients.

机构信息

Communication Studies Department, School of Communication, University of Miami, Coral Gables, FL, United States of America.

School of Communication, University of Miami, Coral Gables, FL, United States of America.

出版信息

PLoS One. 2023 Jun 21;18(6):e0275770. doi: 10.1371/journal.pone.0275770. eCollection 2023.

DOI:10.1371/journal.pone.0275770
PMID:37342999
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10284411/
Abstract

This study investigates the role of source credibility on minority participant recruitment, particularly African American and Black Caribbean patients. A total of nine focus groups (N = 48 participants) were conducted with both patient groups and clinical research coordinators (CRCs). Using the elaboration likelihood model as a guiding framework for analysis, this study found that the credibility of research coordinators (or other professionals who recruit for research studies and clinical trials) was instrumental in shaping attitudes of prospective participants. The perspectives of patients and CRCs aligned closely, with few exceptions. For both groups, professionalism and professional displays (clothing, institutional artifacts) enhanced perceived expertise, a core component of credibility. Trustworthiness, another important component of credibility, was fostered through homophily between recruiter and patient, expressions of goodwill and assuaging anxiety about CRCs' financial motivations for recruitment. Additionally, CRCs believed that credibility was supported when CRCs could emphasize transparency and truthfulness in communication. The importance of these findings for the development of empirically-based training programs to improve communication practices in recruitment contexts is discussed.

摘要

本研究探讨了源可信度在少数民族参与者招募中的作用,特别是针对非裔美国人和加勒比黑人患者。总共进行了九组焦点小组(N=48 名参与者),参与者包括患者群体和临床研究协调员(CRC)。本研究使用详尽可能性模型作为分析的指导框架,发现研究协调员(或其他招募研究和临床试验参与者的专业人员)的可信度对于塑造潜在参与者的态度至关重要。患者和 CRC 的观点非常一致,只有少数例外。对于这两个群体,专业性和专业展示(服装、机构文物)增强了感知的专业知识,这是可信度的核心组成部分。可信度的另一个重要组成部分是可信赖性,通过招募者和患者之间的同质性、表达善意以及减轻对 CRC 招募财务动机的焦虑来培养。此外,CRC 认为,当 CRC 能够强调沟通中的透明度和真实性时,可信度就会得到支持。讨论了这些发现对于开发基于经验的培训计划以改善招募背景下的沟通实践的重要性。