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临床试验中西班牙裔和其他少数族裔代表性不足:招募者的观点。

Underrepresentation of Hispanics and Other Minorities in Clinical Trials: Recruiters' Perspectives.

机构信息

School of Communication, University of Miami, Miami, FL, USA.

Miller School of Medicine, University of Miami, Miami, FL, USA.

出版信息

J Racial Ethn Health Disparities. 2018 Apr;5(2):322-332. doi: 10.1007/s40615-017-0373-x. Epub 2017 Apr 27.

DOI:10.1007/s40615-017-0373-x
PMID:28452008
Abstract

Clinical trials and research studies often fail to recruit participants from the minorities, hampering the generalizability of results. In order to mitigate this problem, the present study investigated how race/ethnicity affects the process of recruiting people from racial and ethnic minority groups, by conducting 11 focus groups with professional recruiters. Several themes emerged, such as how to adapt to potential participants' language competency and literacy levels, the importance to engage in culturally appropriate verbal and non-verbal communication, and to establish a sense of homophily between recruiters and patients. In addition, recruiters pointed out possible solutions to accommodate socioeconomic concerns, to adapt to contextual factors-including immigration status-and ultimately to respond to potential participants' mistrust of medical research. These findings are discussed, and future recommendations are provided.

摘要

临床试验和研究经常未能招募少数民族参与者,从而阻碍了结果的普遍性。为了解决这个问题,本研究通过对专业招募人员进行 11 个焦点小组,调查了种族/族裔如何影响从种族和族裔少数群体招募人员的过程。出现了几个主题,例如如何适应潜在参与者的语言能力和读写水平,进行文化上适当的言语和非言语交流的重要性,以及在招募人员和患者之间建立同质性的感觉。此外,招募人员指出了一些可能的解决方案,以适应社会经济方面的担忧,适应包括移民身份在内的背景因素,并最终应对潜在参与者对医学研究的不信任。讨论了这些发现,并提供了未来的建议。

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Racial Differences Among Factors Associated with Participation in Clinical Research Trials.参与临床研究试验相关因素中的种族差异。
J Racial Ethn Health Disparities. 2016 Sep 8. doi: 10.1007/s40615-016-0285-1.
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Exploring Willingness to Participate in Clinical Trials by Ethnicity.
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Community-Engaged Research in Early Home Visiting: A Scoping Review of Peer-Reviewed Literature.早期家访中的社区参与式研究:同行评审文献的范围综述
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