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一项针对初级保健干预措施的非随机可行性研究,旨在促进有麻烦的哮喘成年人参与在线健康社区:方案。

Non-randomised feasibility study testing a primary care intervention to promote engagement in an online health community for adults with troublesome asthma: protocol.

机构信息

Wolfson Institute of Population Health, Barts and The London School of Medicine and Dentistry, Asthma UK Centre for Applied Research, Queen Mary University of London, London, UK

Wolfson Institute of Population Health, Barts and The London School of Medicine and Dentistry, Asthma UK Centre for Applied Research, Queen Mary University of London, London, UK.

出版信息

BMJ Open. 2023 Jul 11;13(7):e073503. doi: 10.1136/bmjopen-2023-073503.

DOI:10.1136/bmjopen-2023-073503
PMID:37433727
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10347475/
Abstract

INTRODUCTION

In the UK, approximately 4.3 million adults have asthma, with one-third experiencing poor asthma control, affecting their quality of life, and increasing their healthcare use. Interventions promoting emotional/behavioural self-management can improve asthma control and reduce comorbidities and mortality. Integration of online peer support into primary care services to foster self-management is a novel strategy. We aim to co-design and evaluate an intervention for primary care clinicians to promote engagement with an asthma online health community (OHC). Our protocol describes a 'survey leading to a trial' design as part of a mixed-methods, non-randomised feasibility study to test the feasibility and acceptability of the intervention.

METHODS AND ANALYSIS

Adults on the asthma registers of six London general practices (~3000 patients) will be invited to an online survey, via text messages. The survey will collect data on attitudes towards seeking online peer support, asthma control, anxiety, depression, quality of life, information on the network of people providing support with asthma and demographics. Regression analyses of the survey data will identify correlates/predictors of attitudes/receptiveness towards online peer support. Patients with troublesome asthma, who (in the survey) expressed interest in online peer support, will be invited to receive the intervention, aiming to reach a recruitment target of 50 patients. Intervention will involve a one-off, face-to-face consultation with a practice clinician to introduce online peer support, sign patients up to an established asthma OHC, and encourage OHC engagement. Outcome measures will be collected at baseline and 3 months post intervention and analysed with primary care and OHC engagement data. Recruitment, intervention uptake, retention, collection of outcomes, and OHC engagement will be assessed. Interviews with clinicians and patients will explore experiences of the intervention.

ETHICS AND DISSEMINATION

Ethical approval was obtained from a National Health Service Research Ethics Committee (reference: 22/NE/0182). Written consent will be obtained before intervention receipt and interview participation. Findings will be shared via dissemination to general practices, conference presentations and peer-reviewed publications.

TRIAL REGISTRATION NUMBER

NCT05829265.

摘要

简介

在英国,约有 430 万成年人患有哮喘,其中三分之一的人哮喘控制不佳,这影响了他们的生活质量,并增加了他们的医疗保健使用。促进情感/行为自我管理的干预措施可以改善哮喘控制,减少合并症和死亡率。将在线同伴支持整合到初级保健服务中以促进自我管理是一种新策略。我们旨在共同设计和评估一项针对初级保健临床医生的干预措施,以促进他们参与哮喘在线健康社区(OHC)。我们的方案描述了一项“调查引领试验”设计,作为混合方法、非随机可行性研究的一部分,以测试该干预措施的可行性和可接受性。

方法和分析

将邀请六家伦敦全科诊所(约 3000 名患者)的哮喘登记患者参加在线调查,通过短信邀请。该调查将收集有关寻求在线同伴支持的态度、哮喘控制、焦虑、抑郁、生活质量、提供哮喘支持的人员网络信息和人口统计学数据。对调查数据的回归分析将确定对在线同伴支持的态度/接受度的相关因素/预测因素。有麻烦的哮喘患者,如果(在调查中)对在线同伴支持表示感兴趣,将被邀请接受干预,目标是招募 50 名患者。干预措施包括与实践临床医生进行一次性面对面咨询,介绍在线同伴支持,为患者注册到一个已建立的哮喘 OHC,并鼓励 OHC 参与。将在干预后 3 个月收集基线和结果测量数据,并结合初级保健和 OHC 参与数据进行分析。将评估招募、干预参与率、保留率、结果收集和 OHC 参与情况。将对临床医生和患者的访谈进行分析,以探讨干预的经验。

伦理和传播

该研究已获得国家卫生服务研究伦理委员会的批准(参考号:22/NE/0182)。在接受干预和参与访谈之前,将获得书面同意。研究结果将通过向全科医生、会议报告和同行评审出版物传播来分享。

试验注册

NCT05829265。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3d20/10347475/9b3439250fb9/bmjopen-2023-073503f02.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3d20/10347475/2b0991c1f604/bmjopen-2023-073503f01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3d20/10347475/9b3439250fb9/bmjopen-2023-073503f02.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3d20/10347475/2b0991c1f604/bmjopen-2023-073503f01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3d20/10347475/9b3439250fb9/bmjopen-2023-073503f02.jpg

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Understanding Online and Offline Social Networks in Illness Management of Older Patients With Asthma and Chronic Obstructive Pulmonary Disease: Mixed Methods Study Using Quantitative Social Network Assessment and Qualitative Analysis.了解老年哮喘和慢性阻塞性肺疾病患者疾病管理中的线上和线下社交网络:采用定量社交网络评估和定性分析的混合方法研究
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