Research Office of Chronic Disease Management and Rehabilitation, Wuxi School of Medicine, Jiangnan University, Wuxi, People's Republic of China.
Department of Nursing, Wuxi Higher Health Vocational Technology School, Wuxi, People's Republic of China.
Int J Chron Obstruct Pulmon Dis. 2023 Jul 12;18:1377-1389. doi: 10.2147/COPD.S392191. eCollection 2023.
Pulmonary rehabilitation is an important part of the management of chronic obstructive pulmonary disease (COPD), but the participation rate of pulmonary rehabilitation in COPD patients is low. Patient decision aids can facilitate patient participation in pulmonary rehabilitation decisions by providing information and incorporating patient values. The aim of this study was to develop a pulmonary rehabilitation decision aid for patients with COPD.
The aim of this study was to develop a WeChat-based pulmonary rehabilitation patient decision aid to help older patients with COPD participate in pulmonary rehabilitation decision-making.
We developed the decision aid in 3 stages: (1) a literature review was performed to determine the evidence for pulmonary rehabilitation options and outcomes for patients with COPD. (2) a semi-structured interview study was conducted to develop and iterate patient decision aids. (3) usability, acceptability and language expression testing in patients and healthcare professionals.
A total of 16 randomized controlled studies were included in the literature review. Thirty-six participants received semi-structured interviews. The results of interview include four themes: key points of age-friendly design, content of the tool, presentation requirements of contents and study evidence of the tool and other views and suggestions. The resultant goals-of-care decision aid achieved good usability and acceptability. The frequency of language expression increased in both patients and healthcare professionals.
This study uses a systematic development process to develop the first pulmonary rehabilitation decision aid for patients with COPD. It has good usability, acceptability and increased communication between patients and healthcare professionals in the pulmonary rehabilitation decision-making process.
Chinese Clinical Trial Registry (ChiCTR): ChiCTR1900028563; http://apps.who.int/trialsearch/default.aspx.
肺康复是慢性阻塞性肺疾病（COPD）管理的重要组成部分，但 COPD 患者参与肺康复的比例较低。患者决策辅助工具可以通过提供信息和纳入患者价值观来促进患者参与肺康复决策。本研究旨在为 COPD 患者开发一种肺康复决策辅助工具。
本研究旨在开发一种基于微信的肺康复患者决策辅助工具，以帮助老年 COPD 患者参与肺康复决策。
我们分三个阶段开发了决策辅助工具：（1）进行文献回顾，以确定 COPD 患者肺康复选择和结果的证据。（2）进行半结构化访谈研究，以开发和迭代患者决策辅助工具。（3）在患者和医疗保健专业人员中进行可用性、可接受性和语言表达测试。
文献综述共纳入 16 项随机对照研究。36 名参与者接受了半结构化访谈。访谈结果包括四个主题：友好型设计要点、工具内容、内容呈现要求、工具研究证据和其他观点和建议。最终的目标关怀决策辅助工具具有良好的可用性和可接受性。患者和医疗保健专业人员的语言表达频率都有所增加。
本研究采用系统的开发过程为 COPD 患者开发了第一个肺康复决策辅助工具。它具有良好的可用性、可接受性，并在肺康复决策过程中增加了患者和医疗保健专业人员之间的沟通。
中国临床试验注册中心（ChiCTR）：ChiCTR1900028563；http://apps.who.int/trialsearch/default.aspx。
