Transdisciplinary Major in Learning Health Systems, College of Nursing & BK21 FOUR R&E Center for Learning Health Systems, Korea University, Seoul, Republic of Korea.
College of Nursing, Korea University, Seoul, Republic of Korea.
J Psychiatr Ment Health Nurs. 2024 Feb;31(1):14-30. doi: 10.1111/jpm.12954. Epub 2023 Jul 19.
WHAT IS KNOWN ON THE SUBJECT?: Young-onset dementia (YOD) refers to a phenomenon in which dementia symptoms appear under age 65. Diagnosing YOD is difficult and its progression is fast. Furthermore, it limits the socio-economic careers of people living with YOD, regardless of their needs. People living with YOD and their carers have unstable occupational status and their dependents also have to face a high burden of care. They claim that existing social support for dementia is limited to the elderly and is not suitable for them. WHAT THE PAPER ADDS TO EXISTING KNOWLEDGE?: The characteristics of non-pharmacological intervention studies for people living with YOD and/or their carers so far, and an analysis of the needs supported via the applied interventions. A theoretical basis and direction for the interventions to be studied in the future. WHAT ARE THE IMPLICATIONS FOR PRACTICE?: Research and intervention development should focus more on the needs of people living with YOD. In addition, it is necessary to understand and reflect on carers who directly care for people living with YOD. A multidisciplinary programme that supports wide area of the needs should be developed.
INTRODUCTION: Young-onset dementia (YOD) is a highly influential disease that exerts force on the normal life of those who still have to continue social life. Research has been lacking in spite of its seriousness, which accounts for about 9% of all dementia cases.
This study aimed to examine non-pharmacological interventions for people living with YOD and/or their carers, and to analyse how those interventions support their needs.
A scoping review methodology was utilized to search the studies examining interventions for people living with YOD and/or their carers, and in English or Korean. The information was extracted, summarized and analysed in CANE categories.
Sixteen studies were included in the review. Five types of interventions were drawn. 'Memory' was the most covered part of the needs by the interventions.
This study found that interventions currently do not match the needs of people living with YOD and their carers. Multidisciplinary research would be eligible to cover the subjects' wide range of the needs as much as possible.
We suggest the development of a specialized needs assessment tool and specialized interventions for people living with young-onset dementia and their carers.
早发性痴呆（YOD）是一种极具影响力的疾病，会对那些仍需继续社交生活的患者的正常生活造成严重影响。尽管该病的发病率约占所有痴呆症病例的 9%，但相关研究却一直较为匮乏。
本研究旨在调查针对 YOD 患者及其照护者的非药物干预措施，并分析这些干预措施如何满足他们的需求。
采用范围综述方法，检索了针对 YOD 患者及其照护者的干预措施的英文和韩语研究。提取、总结和分析了 CANE 类别中的信息。
本研究共纳入 16 项研究。干预措施可分为 5 种类型。干预措施最常涉及的需求领域是“记忆”。
本研究发现，目前的干预措施与 YOD 患者及其照护者的需求并不匹配。多学科研究将更有资格尽可能多地涵盖患者的广泛需求。
我们建议为 YOD 患者及其照护者开发专门的需求评估工具和干预措施。
