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“我甚至没有接到任何机构打来的一个电话!”:与新冠疫情期间残疾相关的经历与建议

'I did not even receive even a phone call from any institution!': experiences and recommendations related to disability during COVID-19.

作者信息

Kaya Ali, Sahin Candan Hasret

机构信息

Department of Special Education, Nevsehir Haci Bektasi Veli University, Nevsehir, Turkey.

Department of Special Education, Mugla Sitki Kocman University, Mugla, Turkey.

出版信息

Int J Dev Disabil. 2021 Sep 27;69(5):748-756. doi: 10.1080/20473869.2021.1978268. eCollection 2023.

Abstract

Individuals with disabilities and their families, among the disadvantaged groups in society, have encountered increased hardships accessing support and services in various social contexts, such as education, health, transportation, rehabilitation, and social services. Thus, it is essential to examine parents' experiences as a background catalyzer to improve the currently available services and provide psychological and social support. This study examined the experiences of families of children with disabilities who were in Turkey during the pandemic's early stages, and yielded suggestions based on these experiences. A phenomenological design was used in this study, and semi-structured interviews were conducted with 10 parents of children with disabilities. Three themes emerged from data analysis: (a) quarantine, (b) education, and (c) children with disabilities. The findings revealed the importance of taking necessary precautions for individuals with disabilities and their families to access social services. Additionally, findings underline the essentiality of providing psychological support to families while providing and extending family education.

摘要

残疾人和他们的家庭属于社会弱势群体,在教育、医疗、交通、康复和社会服务等各种社会环境中,他们在获得支持和服务方面遇到了更多困难。因此,审视父母的经历作为改善现有服务、提供心理和社会支持的背景催化剂至关重要。本研究考察了疫情初期身处土耳其的残疾儿童家庭的经历,并基于这些经历提出了建议。本研究采用现象学设计,对10名残疾儿童的父母进行了半结构化访谈。数据分析得出了三个主题:(a)隔离,(b)教育,以及(c)残疾儿童。研究结果揭示了采取必要预防措施以便残疾人和他们的家庭获得社会服务的重要性。此外,研究结果强调了在提供和扩展家庭教育的同时为家庭提供心理支持的必要性。

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Stepping Out of Isolation: Autistic People and COVID-19.走出隔离:自闭症患者与新冠疫情
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