Zhang Xiubin, Buttery Sara C, Sterniczuk Kamil, Brownrigg Alex, Kennington Erika, Quint Jennifer K
National Heart and Lung Institute, Imperial College London, London SW7 2BX, UK.
Independent Researcher, London W12 0BZ, UK.
Healthcare (Basel). 2023 Jul 31;11(15):2171. doi: 10.3390/healthcare11152171.
Communication is an important clinical tool for the prevention and control of diseases, to advise and inform patients and the public, providing them with essential knowledge regarding healthcare and disease management. This study explored the experience of communication between healthcare professionals (HCPs) and people with long-term lung conditions, from the patient perspective.
This qualitative study analyzed the experience of people with chronic lung disease, recruited via Asthma & Lung UK (A&LUK) and COPD research databases. A&LUK invited people who had expressed a desire to be involved in research associated with their condition via their Expert Patient Panel and associated patients' groups. Two focus group interviews (12 participants) and one individual interview (1 participant) were conducted. Thematic analysis was used for data analysis.
Two main themes were identified and we named them 'involving communication' and 'communication needs to be improved. 'They included seven subthemes: community-led support increased the patients' social interaction with peers; allied-HCP-led support increased patients' satisfaction; disliking being repeatedly asked the same basic information; feeling communication was unengaging, lacking personal specifics and the use of medical terminology and jargon.
The study has identified what most matters in the process of communication with HCPs in people with long-term respiratory diseases of their healthcare management. The findings of the study can be used to improve the patient-healthcare professional relationship and facilitate a better communication flow in long-term healthcare management.
沟通是疾病预防和控制的一项重要临床工具，用于向患者及公众提供建议和信息，使其了解医疗保健和疾病管理的基本知识。本研究从患者角度探讨了医疗保健专业人员（HCPs）与患有长期肺部疾病的患者之间的沟通体验。
这项定性研究分析了通过英国哮喘与肺病协会（A&LUK）和慢性阻塞性肺疾病（COPD）研究数据库招募的慢性肺病患者的体验。A&LUK通过其专家患者小组及相关患者群体邀请了表示愿意参与与其病情相关研究的人员。进行了两次焦点小组访谈（12名参与者）和一次个人访谈（1名参与者）。采用主题分析法进行数据分析。
确定了两个主要主题，我们将其命名为“参与性沟通”和“沟通有待改善”。它们包括七个子主题：社区主导的支持增加了患者与同龄人之间的社交互动；联合医疗保健专业人员主导的支持提高了患者满意度；不喜欢被反复询问相同的基本信息；感觉沟通缺乏吸引力、缺少个人细节以及使用医学术语和行话。
该研究确定了在长期呼吸系统疾病患者与医疗保健专业人员沟通其医疗管理过程中最重要的因素。该研究结果可用于改善患者与医疗保健专业人员之间的关系，并促进长期医疗管理中更好的沟通流程。
