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对银屑病患者的误解、负面偏见及歧视行为的程度:沙特阿拉伯吉达市人群的横断面调查研究

The Extent of Misconceptions, Negative Prejudices, and Discriminatory Behaviors Toward Psoriasis Patients: A Cross-Sectional Survey Study Among the Population of Jeddah, Saudi Arabia.

作者信息

Abu Alqam Rakan, Obaid Haya, Aljondi Raghad, Alsulymani Badr, Aljohani Raghad, Aleissa Saud M, Baabdullah Ahmed, Zimmo Bader S, Abduljabbar Mohammed H, Hariri Jehad

机构信息

Medicine, King Abdulaziz University Faculty of Medicine, Jeddah, SAU.

Medical School, King Abdulaziz University Faculty of Medicine, Jeddah, SAU.

出版信息

Cureus. 2023 Jul 11;15(7):e41678. doi: 10.7759/cureus.41678. eCollection 2023 Jul.

DOI:10.7759/cureus.41678
PMID:37575830
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10413171/
Abstract

Background Psoriasis is a chronic inflammatory disease that affects around 2% of the population. The lives of psoriasis patients are greatly impacted by stigma and social exclusion, regardless of the severity of the condition. This is the first study of its kind to be conducted in Saudi Arabia. This study aimed to assess peoples' psoriasis-related misconceptions, negative prejudice, and discriminatory behaviors. Methodology A self-administered Google Forms survey was distributed between January and February 2023. The survey was conducted among residents of Jeddah, Saudi Arabia who were enrolled randomly via social media. We aimed to investigate their perception and awareness related to psoriasis, as well as how varying educational levels, age groups, and genders affected these variables. Results In total, 803 individuals participated in the survey. Results showed that 19.9% of the participants did not know about psoriasis. Only 5.1% of respondents stated that they were well knowledgeable about psoriasis. Moreover, psoriasis was more frequently perceived as a communicable disease by people in the age group of 18-29 years (p = 0.000). Surprisingly, only 43.5% of the participants reported that they would shake hands with someone with psoriasis without hesitation. Additionally, 40.7% of the participants were aware that psoriasis requires lifelong treatment. Moreover, the belief that psoriasis does not require lifelong therapy was more prevalent among university graduates (p = 0.000). Conclusions This study found that the residents of Jeddah need further education on skin disorders, in general, and psoriasis, in particular. Future studies should be conducted utilizing various approaches, with a greater emphasis on certain groups of people who engage physically with psoriasis patients.

摘要

背景 银屑病是一种慢性炎症性疾病,影响着约2%的人口。无论病情严重程度如何,银屑病患者的生活都受到污名化和社会排斥的极大影响。这是在沙特阿拉伯进行的同类研究中的首例。本研究旨在评估人们对银屑病的误解、负面偏见和歧视行为。

方法 2023年1月至2月期间开展了一项自行填写的谷歌表单调查。该调查在沙特阿拉伯吉达的居民中进行,这些居民是通过社交媒体随机招募的。我们旨在调查他们对银屑病的认知和了解,以及不同教育水平、年龄组和性别如何影响这些变量。

结果 共有803人参与了调查。结果显示,19.9%的参与者不知道银屑病。只有5.1%的受访者表示他们对银屑病非常了解。此外,18 - 29岁年龄组的人更常将银屑病视为传染病(p = 0.000)。令人惊讶的是,只有43.5%的参与者表示他们会毫不犹豫地与银屑病患者握手。此外,40.7%的参与者知道银屑病需要终身治疗。而且,认为银屑病不需要终身治疗的观念在大学毕业生中更为普遍(p = 0.000)。

结论 本研究发现,吉达的居民总体上需要进一步接受关于皮肤疾病的教育,尤其是银屑病方面的教育。未来的研究应该采用各种方法进行,更加关注某些与银屑病患者有实际接触的人群。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d276/10413171/c652ec524c07/cureus-0015-00000041678-i03.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d276/10413171/484904cad6a8/cureus-0015-00000041678-i01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d276/10413171/8469cbff8a65/cureus-0015-00000041678-i02.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d276/10413171/c652ec524c07/cureus-0015-00000041678-i03.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d276/10413171/484904cad6a8/cureus-0015-00000041678-i01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d276/10413171/8469cbff8a65/cureus-0015-00000041678-i02.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d276/10413171/c652ec524c07/cureus-0015-00000041678-i03.jpg

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本文引用的文献

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