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法国对银屑病患者的误解程度、负面偏见和歧视行为。

Extent of misconceptions, negative prejudices and discriminatory behaviour to psoriasis patients in France.

机构信息

Service de Dermatologie, Institut Alfred Fournier, Paris, France.

France Psoriasis Association, Paris, France.

出版信息

J Eur Acad Dermatol Venereol. 2016 Apr;30(4):650-4. doi: 10.1111/jdv.13095. Epub 2015 Mar 31.

Abstract

BACKGROUND

The perception of stigmatization of patients with psoriasis is largely due to misconceptions and negative prejudice about this skin disease. 'Uneducated' judgments can give rise to discriminatory behaviours.

OBJECTIVE

Evaluate the prevalence, in France, of misconceptions, negative prejudice and discriminatory behaviour towards psoriasis patients.

METHODS

Online survey conducted in June 2011, aimed at 1005 persons aged 16-64 years, representative of the French population. The representativeness of the sample was ensured by quota methodology (gender, age, occupation of the interviewed person) after stratification by region and location category. The respondents were asked to respond to a questionnaire on their knowledge of psoriasis, their attitude and main feelings/perceptions towards psoriasis patients.

RESULTS

About 62.4% of respondents recognize a lack of information about psoriasis and 19.7% have misconceptions about this disease. About 16.5% believe that psoriasis is contagious, 6.8% believe this skin disease is related to personal hygiene and 3.2% believe that it affects more people with low personal hygiene. About 50.0% of respondents show discriminatory behaviour towards psoriasis patients, reflected by reluctance to maintain friendship ties/a relationship of friendliness (7.6%), to have lunch or dinner with a person with visible manifestations (17.9%), to give a kiss on the cheek in greeting (29.7%), to shake hands (28.8%) and to have sexual relations/intercourse (44.1%). Patients with negative prejudice about the psoriasis frequently have misconceptions towards psoriasis patients. About 52.8% of respondents do not know anyone with psoriasis. Socio-demographic indicators such as gender, education level and rural or urban way of life are not associated with an increased prevalence of misconceptions and/or discriminatory behaviour.

CONCLUSION

The lack of knowledge about psoriasis in France is important. There is an urgent need to strengthen information campaigns about psoriasis intended for the General Public.

摘要

背景

人们对银屑病患者的污名化看法主要源于对这种皮肤病的误解和负面偏见。“未受教育”的判断可能导致歧视行为。

目的

评估法国对银屑病患者的误解、负面偏见和歧视行为的流行程度。

方法

2011 年 6 月进行了一项在线调查,对象为 1005 名 16-64 岁的法国人。通过按地区和地点类别分层的配额方法(受访者的性别、年龄、职业)确保样本的代表性。受访者被要求回答一个关于他们对银屑病的认识、对银屑病患者的态度和主要感受/看法的问卷。

结果

约 62.4%的受访者承认对银屑病缺乏了解,19.7%对这种疾病存在误解。约 16.5%的人认为银屑病具有传染性,6.8%的人认为这种皮肤病与个人卫生有关,3.2%的人认为它影响更多个人卫生习惯差的人。约 50.0%的受访者对银屑病患者表现出歧视行为,反映在不愿与银屑病患者保持友谊关系/友好关系(7.6%)、不愿与有明显症状的人共进午餐或晚餐(17.9%)、不愿以脸颊亲吻问候(29.7%)、不愿握手(28.8%)和不愿发生性关系/性交(44.1%)。对银屑病持负面偏见的患者常常对银屑病患者存在误解。约 52.8%的受访者不认识任何银屑病患者。社会人口学指标,如性别、教育水平和城乡生活方式,与误解和/或歧视行为的高发率无关。

结论

法国对银屑病的了解不足,急需加强针对公众的银屑病宣传活动。

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