Department of Psychiatry and Behavioral Sciences, Memorial Sloan Kettering Cancer Center, New York, NY, USA.
Clinical Research Division, Fred Hutchinson Cancer Center, Seattle, WA, USA.
Transl Behav Med. 2023 Sep 28;13(10):804-808. doi: 10.1093/tbm/ibad048.
Building upon prior work developing and pilot testing a provider-focused Empathic Communication Skills (ECS) training intervention, this study sought feedback from key invested partners who work with individuals with lung cancer (i.e. stakeholders including scientific and clinical advisors and patient advocates) on the ECS training intervention. The findings will be used to launch a national virtually-delivered multi-center clinical trial that will examine the effectiveness and implementation of the evidence-based ECS training intervention to reduce patients' experience of lung cancer stigma. A 1-day, hybrid, key invested partners meeting was held in New York City in Fall 2021. We presented the ECS training intervention to all conference attendees (N = 25) to seek constructive feedback on modifications of the training content and platform for intervention delivery to maximize its impact. After participating in the immersive training, all participants engaged in a group discussion guided by semi-structured probes. A deductive thematic content analysis was conducted to code focus group responses into 12 distinct a priori content modification recommendations. Content refinement was suggested in 8 of the 12 content modification themes: tailoring/tweaking/refining, adding elements, removing elements, shortening/condensing content, lengthening/extending content, substituting elements, re-ordering elements, and repeating elements. Engagement and feedback from key invested multi-sector partner is a valuable resource for intervention content modifications. Using a structured format for refining evidence-based interventions can facilitate efforts to understand the nature of modifications required for scaling up interventions and the impact of these modifications on outcomes of interest. ClinicalTrials.gov Identifier: NCT05456841.
在先前开发和试点测试以提供者为重点的同理心沟通技巧(ECS)培训干预措施的基础上,本研究征求了与肺癌患者合作的主要利益相关者(即包括科学和临床顾问以及患者权益倡导者在内的利益相关者)对 ECS 培训干预措施的反馈。研究结果将用于启动一项全国性的虚拟多中心临床试验,该试验将检验基于证据的 ECS 培训干预措施在减少患者肺癌耻辱感方面的有效性和实施情况。2021 年秋季,在纽约市举行了为期一天的混合式主要利益相关者会议。我们向所有会议参与者(N=25)展示了 ECS 培训干预措施,以寻求对培训内容和干预交付平台进行修改的建设性反馈,以最大限度地发挥其影响力。在参与沉浸式培训后,所有参与者都根据半结构化探针进行了小组讨论。采用演绎主题内容分析法对焦点小组的回应进行编码,将其分为 12 个预先确定的内容修改建议。在 12 个内容修改主题中的 8 个主题中提出了内容细化建议:调整/调整/改进、添加元素、删除元素、缩短/浓缩内容、延长/扩展内容、替换元素、重新排列元素和重复元素。来自多部门主要利益相关者的参与和反馈是干预内容修改的宝贵资源。使用一种结构化格式来完善基于证据的干预措施可以促进人们了解扩大干预措施所需的修改性质以及这些修改对相关结果的影响。ClinicalTrials.gov 标识符:NCT05456841。