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独居对提供认知障碍患者服务的作用的看法。

Perceptions of the Role of Living Alone in Providing Services to Patients With Cognitive Impairment.

机构信息

Institute for Health & Aging, University of California, San Francisco.

Phillip R. Lee Institute for Health Policy Studies, University of California, San Francisco.

出版信息

JAMA Netw Open. 2023 Aug 1;6(8):e2329913. doi: 10.1001/jamanetworkopen.2023.29913.

Abstract

IMPORTANCE

The potential role of living alone in either facilitating or hampering access to and use of services for older adults with cognitive impairment is largely unknown. Specifically, it is critical to understand directly from health care and social services professionals how living alone creates barriers to the access and use of supportive health care and social services for racially and ethnically diverse patients with cognitive impairment.

OBJECTIVE

To identify the potential role of living alone in the access and use of health care and social services for diverse patients with cognitive impairment by investigating professionals' perceptions of caring for such patients who live alone in comparison with counterparts living with others.

DESIGN, SETTING, AND PARTICIPANTS: This qualitative study of 76 clinicians, social workers, and other professionals used semistructured interviews conducted between February 8, 2021, and June 8, 2022, with purposively sampled professionals providing services to diverse patients with cognitive impairment in Michigan, California, and Texas.

MAIN OUTCOMES AND MEASURES

Clinicians, social workers, and other professionals compared serving patients with cognitive impairment and living alone vs counterparts living with others. An inductive content analysis was used to analyze the interview transcripts.

RESULTS

A total of 76 professionals were interviewed (mean [SD] age, 49.3 [12.7] years); 59 were female (77.6%), 8 were Black or African American (11%), and 35 were White (46%). Participants included physicians, nurses, social workers, and home-care aides, for a total of 20 professions. Participants elucidated specific factors that made serving older adults living alone with cognitive impairment more challenging than serving counterparts living with others (eg, lacking an advocate, incomplete medical history, requiring difficult interventions), as well as factors associated with increased concerns when caring for older adults living alone with cognitive impairment, such as isolation and a crisis-dominated health care system. Participants also identified reasons for systematic unmet needs of older adults living alone with cognitive impairment for essential health care and social services, including policies limiting access and use to public home-care aides.

CONCLUSIONS AND RELEVANCE

In this qualitative study of professionals' perspectives, findings suggest that living alone is a social determinant of health among patients with cognitive impairment owing to substantial barriers in access to services. Results raised considerable concerns about safety because the US health care system is not well equipped to address the unique needs of older adults living alone with cognitive impairment.

摘要

重要性

独居在促进或阻碍认知障碍老年人获得和使用服务方面的潜在作用在很大程度上是未知的。具体来说,从医疗保健和社会服务专业人员那里直接了解独居如何为不同族裔和种族的认知障碍患者获得和使用支持性的医疗保健和社会服务带来障碍,这一点至关重要。

目的

通过调查专业人员对独居的认知障碍患者的护理看法,与同住的患者进行比较,确定独居在认知障碍多样化患者的医疗保健和社会服务获取和使用方面的潜在作用。

设计、地点和参与者:本定性研究对密歇根州、加利福尼亚州和德克萨斯州的 76 名临床医生、社会工作者和其他专业人员进行了半结构化访谈,这些专业人员为认知障碍多样化患者提供服务。受访者是通过有针对性的抽样选择的。

主要结果和措施

临床医生、社会工作者和其他专业人员比较了为认知障碍和独居患者提供服务的情况,以及为与他人同住的患者提供服务的情况。采用归纳内容分析法对访谈记录进行分析。

结果

共有 76 名专业人员接受了采访(平均[标准差]年龄为 49.3[12.7]岁);59 名女性(77.6%),8 名黑人或非裔美国人(11%),35 名白人(46%)。受访者包括医生、护士、社会工作者和家庭护理人员,共有 20 个职业。参与者阐述了使独居认知障碍老年人的服务更具挑战性的具体因素,而不是为与他人同住的患者提供服务(例如,缺乏拥护者、不完整的病史、需要困难的干预措施),以及与照顾独居认知障碍老年人相关的增加的担忧因素,例如孤立和以危机为主导的医疗保健系统。参与者还确定了独居认知障碍老年人对基本医疗保健和社会服务的系统需求未得到满足的原因,包括限制公共家庭护理人员获得和使用服务的政策。

结论和相关性

在这项对专业人员观点的定性研究中,研究结果表明,独居是认知障碍患者的一个社会决定因素,因为在获得服务方面存在实质性障碍。研究结果引起了对安全的极大关注,因为美国的医疗保健系统还没有准备好应对独居认知障碍老年人的独特需求。

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