Hill Mary K, Laughter Melissa R, Harmange Cecile I, Dellavalle Robert P, Rundle Chandler W, Dunnick Cory A
Department of Dermatology, University of Colorado Anschutz Medical Campus, Aurora, CO, United States.
School of Medicine, University of Colorado, Aurora, CO, United States.
JMIR Dermatol. 2021 Dec 16;4(2):e30620. doi: 10.2196/30620.
There is limited measurement and reporting of quality of life (QoL) outcomes for patients with contact dermatitis (CD).
The purpose of this study is to develop a standardized Contact Dermatitis Quality of Life index (CDQL) for adult patients.
A list of 81 topics was compiled from a review of QoL measures used previously in CD research. A total of 2 rounds of web-based Delphi surveys were sent to physicians who registered to attend the 2018 American Contact Dermatitis Society meeting, asking that they rank the relevance of topics for measuring QoL in CD using a 4-point scale. Items met consensus for inclusion if at least 78% of respondents ranked them as relevant or very relevant, and their median score was ≥3.25.
Of the 210 physicians contacted, 34 physicians completed the initial survey and 17 completed the follow-up survey. A total of 22 topics met consensus for inclusion in the CDQL, addressing symptoms, emotions, functions of daily living, social and physical functions, work/school functions, and treatment.
This study was limited by the following factors: few open-ended questions in the initial survey, a lack of direct patient feedback, and long survey length, which likely contributed to lower survey participation. The CDQL is a comprehensive, CD-specific QoL measure developed on the basis of expert consensus via a modified Delphi process to be used by physicians and other health care professionals who care for adult patients with contact dermatitis.
接触性皮炎（CD）患者生活质量（QoL）结果的测量和报告有限。
本研究的目的是为成年患者制定标准化的接触性皮炎生活质量指数（CDQL）。
通过回顾先前在CD研究中使用的QoL测量方法，编制了一份包含81个主题的清单。总共向注册参加2018年美国接触性皮炎学会会议的医生发送了两轮基于网络的德尔菲调查，要求他们使用4分制对测量CD患者QoL的主题相关性进行排名。如果至少78%的受访者将项目评为相关或非常相关，且其中位数得分≥3.25，则这些项目达成纳入共识。
在联系的210名医生中，34名医生完成了初始调查，17名医生完成了后续调查。共有22个主题达成纳入CDQL的共识，涉及症状、情绪、日常生活功能、社会和身体功能、工作/学校功能以及治疗。
本研究受到以下因素的限制：初始调查中开放性问题较少、缺乏直接的患者反馈以及调查长度较长，这些可能导致调查参与率较低。CDQL是一种基于专家共识，通过改良的德尔菲过程开发的全面的、针对CD的QoL测量方法，供照顾成年接触性皮炎患者的医生和其他医疗保健专业人员使用。
