Pakhdikian Sarin H, Woo Benjamin K P
Department of Psychiatry, Olive View Medical Center, University of California, Los Angeles, Sylmar, CA, United States.
College of Osteopathic Medicine of the Pacific, Western University of Health Sciences, Pomona, CA, United States.
JMIR Dermatol. 2021 Jul 28;4(2):e29904. doi: 10.2196/29904.
Psoriasis is a multisystem chronic inflammatory skin disease and is a relatively common disorder in children and adults. The burden of psoriasis impacts both the physiological and psychological areas of one's life. Given the robust use of the internet and social media, patients have turned to Instagram for educational and social support to discuss psoriasis.
This study aimed to characterize how patients interact with Instagram to cope with the biopsychosocial aspects of psoriasis. We analyzed journals and organizations, and compared them with the public profiles of individuals diagnosed with psoriasis who provided information and refuge. Our goal was to identify how followers engaged and what type of content they were most receptive to in terms of psoriasis.
All journals and organizations representing psoriasis were selected for review. The top 10 public profiles of individuals diagnosed with psoriasis were also selected for comparison. The numbers of followers, followings, and posts were noted to evaluate popularity. The numbers of likes and comments were also recorded to understand engagement.
On comparing journals and organizations to public profiles, we found that the former had a greater number of followers but engaged less with the audience on Instagram based on the number of profiles they followed. Profiles of individuals with psoriasis produced content that was more personal and relatable, including experiences with flares, motivational text, and emotional support. The content produced by journals and organizations was geared toward education and providing peer-reviewed resources and commentary from licensed health care professionals. Followers were more engaged via "likes" than "comments" on the Instagram profiles of journals and organizations, as well as the public profiles of individuals diagnosed with psoriasis.
There was evident online presence of journals and organizations, and public profiles of individuals providing content regarding psoriasis on Instagram. However, there were distinguishing features for the type of content being produced. Journals and organizations took the traditional approach in providing evidence-based information, whereas the public profiles of individuals provided content related to the psychosocial needs of the psoriasis community. The 10 profiles of individuals provided posts involving creativity and real experiences, which were evidently well-received based on "likes" and "comments." This research helps us appreciate what the audience on Instagram is looking for to further address how we can merge these needs to provide a holistic platform on Instagram for both providers and patients. Social media creates a space for collaboration, which can be advantageous for journals and organizations to work with patient volunteers from diverse backgrounds who can help build a therapeutic alliance and public presence on Instagram with their viewers in order to deliver medical peer-reviewed information.
银屑病是一种多系统慢性炎症性皮肤病，在儿童和成人中都较为常见。银屑病的负担会影响一个人生活的生理和心理方面。鉴于互联网和社交媒体的广泛使用，患者已转向照片墙（Instagram）寻求教育和社会支持，以讨论银屑病。
本研究旨在描述患者如何通过照片墙来应对银屑病的生物心理社会方面的问题。我们分析了期刊和组织，并将它们与被诊断患有银屑病且提供信息和慰藉的个人的公开资料进行比较。我们的目标是确定关注者的参与方式以及他们在银屑病方面最容易接受的内容类型。
挑选出所有代表银屑病的期刊和组织进行审查。还挑选出被诊断患有银屑病的个人的前10个公开资料进行比较。记录关注者、关注对象和帖子的数量以评估受欢迎程度。还记录点赞和评论的数量以了解参与度。
在将期刊和组织与公开资料进行比较时，我们发现前者的关注者数量更多，但基于其关注的资料数量，它们在照片墙上与受众的互动较少。患有银屑病的个人的资料所产生的内容更具个人性且更能引起共鸣，包括皮疹发作的经历、励志文字和情感支持。期刊和组织所产生的内容旨在教育并提供经过同行评审的资源以及来自持牌医疗保健专业人员的评论。在期刊和组织的照片墙资料以及被诊断患有银屑病的个人的公开资料上，关注者通过“点赞”比通过“评论”的参与度更高。
照片墙上明显存在着提供有关银屑病内容的期刊、组织以及个人的公开资料。然而，所产生的内容类型存在显著特征。期刊和组织采用传统方法提供基于证据的信息，而个人的公开资料则提供与银屑病群体心理社会需求相关的内容。这10个个人资料所发布的内容涉及创造力和真实经历，基于“点赞”和“评论”来看显然很受欢迎。这项研究有助于我们了解照片墙的受众在寻找什么，以便进一步探讨如何融合这些需求，在照片墙上为提供者和患者提供一个全面的平台。社交媒体创造了一个合作空间，这对期刊和组织与来自不同背景的患者志愿者合作可能是有利的，这些志愿者可以帮助建立治疗联盟，并在照片墙上与他们的观众建立公众形象，以便传递经过医学同行评审的信息。
