Institute for Medical Information Processing, Biometry, and Epidemiology (IBE), Pettenkofer School of Public Health, LMU Munich, Munich, Germany.
Technical University of Munich, School of Medicine, Department of Dermatology and Allergy, Munich, Germany.
J Dtsch Dermatol Ges. 2020 Jun;18(6):571-581. doi: 10.1111/ddg.14070. Epub 2020 Apr 4.
The Internet is a commonly used source of health-related information. Social media allow psoriasis patients to seek and share information about their disease. However, they also involve risks such as misinformation and envy. The aim of this study was to explore the relevance and suitability of Facebook as a source of disease-related information for patients with psoriasis.
Cross-sectional study consisting of an online survey (11/2017-01/2018). The link was published on a German information website focused on psoriasis. We also collected data about the respondents' general and disease-related Facebook habits as well as their assessment of opportunities and risks of Facebook in the context of psoriasis.
101 participants with psoriasis completed the questionnaire. Of these, 75 % reported using Facebook at least once a month, and 72 % of Facebook users stated that they had searched for disease-related information on Facebook. Active members of psoriasis-related Facebook groups deemed Facebook more helpful for coping with psoriasis. 60 % of Facebook users reported unreliable information and 57 % reported sales promotions regarding psoriasis when using Facebook.
We found that Facebook is a relevant source of information for psoriasis patients. However, the quality of information offered seems insufficient and needs to be improved.
互联网是获取健康相关信息的常用来源。社交媒体使银屑病患者能够寻求和分享有关其疾病的信息。然而，它们也存在风险，如错误信息和嫉妒。本研究旨在探讨 Facebook 作为银屑病患者获取疾病相关信息的来源的相关性和适宜性。
横断面研究，包括一项在线调查（2017 年 11 月至 2018 年 1 月）。链接发布在一个专注于银屑病的德国信息网站上。我们还收集了受访者关于一般和疾病相关的 Facebook 习惯的数据，以及他们对 Facebook 在银屑病背景下的机会和风险的评估。
101 名银屑病患者完成了问卷。其中，75%的人报告至少每月使用一次 Facebook，72%的 Facebook 用户表示曾在 Facebook 上搜索过与疾病相关的信息。活跃于银屑病相关 Facebook 群组的成员认为 Facebook 对应对银屑病更有帮助。60%的 Facebook 用户在使用 Facebook 时报告了不可靠的信息，57%的 Facebook 用户报告了针对银屑病的促销活动。
我们发现 Facebook 是银屑病患者的一个相关信息来源。然而，所提供的信息质量似乎不足，需要改进。
