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从青少年饮食失调治疗中心向成人饮食失调治疗中心的过渡:一项运用解释现象学分析对神经性厌食症住院患者及其照顾者的经历进行的定性研究。

Transition from an adolescent to an adult eating disorder treatment centre: A qualitative investigation of the experience of inpatients with anorexia nervosa and their carers using interpretative phenomenological analysis.

作者信息

Scanferla Elisabetta, Seryer Sabrina, Pachoud Bernard, Gorwood Philip

机构信息

Clinique des Maladies Mentales et de l'Encéphale, Hôpital Sainte-Anne, GHU Paris Psychiatrie et Neurosciences, Paris, France.

Université Paris Cité, ED 450, Paris, France.

出版信息

Eur Eat Disord Rev. 2023 Sep 1. doi: 10.1002/erv.3030.

Abstract

AIMS

To capture the subjective experience of eating disorder patients and their immediate family members in the transition between adolescent and adult treatment services and to explore how both groups make sense of this specific experience.

DESIGN

Qualitative study in the form of in-depth interviews using interpretative phenomenological analysis.

SETTINGS

Participants were recruited from a university department of a large psychiatric hospital specialising in eating disorders between July 2021 and September 2022.

PARTICIPANTS

A convenience sample of 18 participants was recruited, including 12 patients aged 19-30 years (m = 22.5, SD = 3.8) and six of their respective caregivers.

RESULTS

Four main themes were identified in relation to the participants' experience of transition to adult care: (1) the detailed description of the transition process, (2) the emotions associated with this experience, (3) the challenges encountered and (4) recommendations for improving the process. Two fundamental meaning-making processes emerged: the feeling of being "lost in transition" and the opportunity to "become an adult". The results highlighted the factors that characterise this experience for patients and their families, and the need for practical and psychological support during the transition process.

CONCLUSIONS

This study provides a unique insight into the experience of patients and their immediate family members regarding the transition from adolescent to adult care. It reveals the multidimensional impact of the transition experience and highlights the need for increased support for family members. These findings may provide new insights into interventions that promote successful transition and encourage rethinking the organisation of this crucial stage of the care pathway.

摘要

目的

了解饮食失调患者及其直系亲属在青少年和成人治疗服务过渡阶段的主观体验,并探讨这两组人群如何理解这一特定经历。

设计

采用解释现象学分析的深度访谈形式进行定性研究。

地点

参与者于2021年7月至2022年9月期间从一家专门治疗饮食失调的大型精神病医院的大学部门招募。

参与者

招募了18名参与者的便利样本,包括12名年龄在19至30岁之间的患者(平均年龄=22.5岁,标准差=3.8岁)及其6名各自的照顾者。

结果

在参与者向成人护理过渡的经历方面确定了四个主要主题:(1)过渡过程的详细描述,(2)与该经历相关的情绪,(3)遇到的挑战,以及(4)改进该过程的建议。出现了两个基本的意义构建过程:“在过渡中迷失”的感觉和“成为成年人”的机会。结果突出了患者及其家人这一经历的特征因素,以及过渡过程中对实际和心理支持的需求。

结论

本研究对患者及其直系亲属从青少年护理过渡到成人护理的经历提供了独特的见解。它揭示了过渡经历的多维度影响,并强调了增加对家庭成员支持的必要性。这些发现可能为促进成功过渡的干预措施提供新的见解,并鼓励重新思考护理途径这一关键阶段的组织安排。

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