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本文引用的文献

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The association between health care quality and cost: a systematic review.医疗保健质量与成本的关联:系统评价。
Ann Intern Med. 2013 Jan 1;158(1):27-34. doi: 10.7326/0003-4819-158-1-201301010-00006.
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Decisional conflict and regret: consequences of surrogate decision making for the chronically critically ill.决策冲突和遗憾:代理决策对慢性重病患者的后果。
Appl Nurs Res. 2012 Nov;25(4):271-5. doi: 10.1016/j.apnr.2011.03.003. Epub 2011 Jun 11.
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Husserl and Heidegger: exploring the disparity.胡塞尔与海德格尔:探究差异
Int J Nurs Pract. 2009 Feb;15(1):7-15. doi: 10.1111/j.1440-172X.2008.01724.x.
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Validation of a decision regret scale.决策后悔量表的验证
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晚期癌症患者维持生命治疗决策的经历

Experiences of Life-Sustaining Treatment Decisions among Patients with Terminal Cancer.

作者信息

Kim Yoon Sun

机构信息

Department of Nursing, Dongnam Institute of Radiological and Medical Sciences, Busan, Korea.

出版信息

J Hosp Palliat Care. 2021 Jun 1;24(2):97-108. doi: 10.14475/jhpc.2021.24.2.97.

DOI:10.14475/jhpc.2021.24.2.97
PMID:37675239
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10180048/
Abstract

PURPOSE

The purpose of this study was to examine the life-sustaining treatment decisions of terminal cancer patients.

METHODS

Data on 10 terminal cancer patients who decided to withhold or withdraw from treatment were collected using in-depth interviews conducted from February 8 to October 30, 2019. Data were collected until saturation was reached and then analyzed using Colaizzi's phenomenological method.

RESULTS

In this study, six thematic clusters were identified "having complicated feelings", "making choices to protect everyone", "accepting and preparing for death", "feeling distress", "pursuing spiritual well-being", and "evaluating the new system".

CONCLUSION

When facing death, terminal cancer patients often made choices to protect their family and their dignity with uneasiness of mind when deciding to withdraw from life-sustaining treatments. Though many patients had accepted and prepared for death, they experienced distress about leaving children behind after death. They also pursued spiritual well-being to find peace after deciding to withdraw from life-sustaining treatment. In addition, participants evaluated the new system of policies pertaining to decisions on life-sustaining treatment. Thus, various approaches regarding acceptance and preparation for death, communication with family, hope, and spiritual comfort should be taken in educational interventions to assist terminal cancer patients as they decide whether to withdraw from life-sustaining treatment.

摘要

目的

本研究旨在探讨晚期癌症患者维持生命治疗的决策。

方法

采用深度访谈法收集了2019年2月8日至10月30日期间10例决定停止或撤销治疗的晚期癌症患者的数据。持续收集数据直至达到饱和,然后采用科莱齐现象学方法进行分析。

结果

本研究确定了六个主题类别,即“心情复杂”“做出保护每个人的选择”“接受并为死亡做准备”“感到痛苦”“追求精神幸福”以及“评估新制度”。

结论

面对死亡时,晚期癌症患者在决定撤销维持生命治疗时,往往会怀着不安的心情做出保护家人和自身尊严的选择。尽管许多患者已经接受并为死亡做好了准备,但他们仍因死后留下子女而感到痛苦。在决定撤销维持生命治疗后,他们还追求精神幸福以寻求安宁。此外,参与者对维持生命治疗决策相关政策的新制度进行了评估。因此,在教育干预中,应采取各种关于接受和为死亡做准备、与家人沟通、希望以及精神慰藉的方法,以帮助晚期癌症患者决定是否撤销维持生命治疗。