Wilson Imogen, Ukoha-Kalu Blessing O, Okoeki Mabel, Clark Joseph, Boland Jason W, Pask Sophie, Nwulu Ugochinyere, Elliott-Button Helene, Folwell Anna, Johnson Miriam J, Harman Daniel, Murtagh Fliss Em
Wolfson Palliative Care Research Centre, Hull York Medical School, University of Hull, Hull, UK.
City Health Care Partnership, Hull, UK.
J Patient Exp. 2023 Sep 5;10:23743735231199827. doi: 10.1177/23743735231199827. eCollection 2023.
The UK has a significant and growing population of older adults with frailty and complex healthcare needs, necessitating innovative care solutions. This study aimed to explore patients' and carers' experiences of a novel integrated service that was set up to address the increasing healthcare needs of older people living with frailty. A qualitative study that combined free-text survey questions with in-depth interviews. This study is part of a larger non-randomized trial of the service, with evaluation of wellbeing and quality of life at baseline, 2 to 4 weeks, and 10 to 14 weeks. Patients (aged 65 and above) with an electronic Frailty Index in the severe range and their informal family carers participated in this study. Data were collected between April 2019 and March 2020. Free text survey responses and interview data were subjected to reflexive thematic analyses. Four themes were generated: the overall experience of the service; interactions within the service; treatment and interventions; and outcomes due to the service. Most participants wanted further follow-up and more extensive integration with other services. Most participants described their overall experience positively, especially the available time to address their full range of concerns, but opportunities to integrate the service more fully and to extend follow-up remain.
英国有大量且不断增长的体弱及有复杂医疗需求的老年人，这就需要创新的护理解决方案。本研究旨在探索一种新型综合服务中患者及护理人员的体验，该服务是为满足体弱老年人日益增长的医疗需求而设立的。这是一项定性研究，将自由文本调查问卷与深入访谈相结合。本研究是该服务更大规模非随机试验的一部分，在基线、2至4周以及10至14周时对幸福感和生活质量进行评估。患有严重电子衰弱指数的65岁及以上患者及其非正式家庭护理人员参与了本研究。数据收集于2019年4月至2020年3月期间。自由文本调查问卷回复和访谈数据进行了反思性主题分析。生成了四个主题：服务的总体体验；服务中的互动；治疗与干预；以及服务带来的结果。大多数参与者希望进一步随访，并与其他服务进行更广泛的整合。大多数参与者对他们的总体体验给予了积极评价，尤其是有时间解决他们所有的担忧，但仍有机会更全面地整合该服务并延长随访。
