Norinder Maria, Axelsson Lena, Årestedt Kristofer, Grande Gunn, Ewing Gail, Alvariza Anette
Department of Health Care Sciences, Palliative Research Centre, Marie Cederschiöld University, Box 11189, 100 61, Stockholm, Sweden; Capio Palliative Care, Dalen Hospital, 121 87, Stockholm, Sweden.
Department of Nursing Science, Sophiahemmet University, Stockholm, Sweden.
Eur J Oncol Nurs. 2023 Oct;66:102412. doi: 10.1016/j.ejon.2023.102412. Epub 2023 Sep 13.
The Carer Support Needs Assessment Tool Intervention (CSNAT-I) was designed to help family caregivers identify, reflect upon, and express their support needs in a conversation with a health care professional and gain tailored support. The CSNAT-I has shown positive effects for both nurses and family caregivers but for more comprehensive understanding this study aims to examine family caregivers' experiences of discussing their needs with a nurse during specialised home care, utilizing the CSNAT-I.
The study used an inductive qualitative descriptive design based on framework analysis. Data was collected using individual semi-structured telephone interviews with 10 family caregivers, with a median age of 66, from four specialised home care services.
Family caregivers appreciated having scheduled meetings with nurses utilizing the CSNAT-I which gave them an opportunity to focus on what was important to them. Family caregivers experienced that the conversations were co-created with a flexible dialogue. The conversations provided new perspectives and insights which helped in finding possible solutions. Family caregivers felt empowered by the co-created conversation and took on a more active role in involving the rest of their family to find support to themselves and the patients.
The CSNAT-I can facilitate communication between family caregivers and nurses leading to adequate supportive inputs. The intervention gives family caregivers an increased opportunity to be involved in their own support, which may enhance their sense of security. According to family caregivers' experiences, CSNAT-I may be an adequate way to support family caregivers to reflect and discuss their needs.
护理者支持需求评估工具干预措施（CSNAT-I）旨在帮助家庭护理者识别、反思并在与医护人员的对话中表达他们的支持需求，从而获得量身定制的支持。CSNAT-I已对护士和家庭护理者均显示出积极效果，但为了更全面地理解，本研究旨在探讨家庭护理者在专业居家护理期间使用CSNAT-I与护士讨论其需求的经历。
本研究采用基于框架分析的归纳性定性描述设计。通过对来自四项专业居家护理服务的10名家庭护理者进行个体半结构化电话访谈来收集数据，这些护理者的年龄中位数为66岁。
家庭护理者赞赏与使用CSNAT-I的护士安排会议，这使他们有机会专注于对自己重要的事情。家庭护理者体验到对话是通过灵活的交流共同创造的。这些对话提供了新的视角和见解，有助于找到可能的解决方案。家庭护理者因共同创造的对话而感到有力量，并在让家庭其他成员参与以获得对自己和患者的支持方面发挥了更积极的作用。
CSNAT-I可以促进家庭护理者与护士之间的沟通，从而带来充分的支持性投入。该干预措施使家庭护理者有更多机会参与到自身的支持过程中，这可能会增强他们的安全感。根据家庭护理者的经历，CSNAT-I可能是支持家庭护理者反思和讨论其需求的一种适当方式。
