Greenwood Elly, Cooklin Amanda, Barbaro Josephine, Miller Charne
School of Nursing and Midwifery, La Trobe University, Melbourne, Australia.
Judith Lumley Centre, School of Nursing and Midwifery, La Trobe University, Melbourne, Australia.
J Adv Nurs. 2024 Mar;80(3):908-923. doi: 10.1111/jan.15880. Epub 2023 Sep 24.
To explore the factors that affect the experiences of autistic patients in the hospital setting.
A scoping review.
A systematic literature search using the databases CINAHL, Medline and Google Scholar was undertaken in September 2021 and updated in January 2023. This review is based on the methodological framework of Arksey and O'Malley (International Journal of Social Research Methodology, 8(1):19-32, 2005), which was further refined by the Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews.
Autistic patients, as well as their families and healthcare staff, face several barriers that can impact their healthcare experiences within hospital settings. Of 211 articles screened, 30 were eligible and included. Through our review, we identified two main themes. The first theme, 'challenges to hospital experiences', includes four sub-themes: (1) communication, (2) a mismatch between the needs for autistic patients and the hospital environment, (3) challenges related to parents' experiences and (4) challenges related to hospital systems. The second theme, 'facilitators that improve hospital experiences', includes three sub-themes: (1) provision of care pathways, (2) partnership between parents and experts and (3) facilitators to improve hospital systems. By understanding these themes, we can work to address the barriers that autistic patients and their families face, while leveraging the facilitators to improve their hospital experiences.
It is critical to understand the experiences of autistic patients in the hospital setting because they present a substantial risk of hospital admission due to their associated acute to chronic health conditions. Additionally, nurses and other medical staff must understand the unique hospital experiences and challenges of autistic patients to improve care and facilitate better hospital experiences. This review further highlights the crucial need to adopt a collaborative and inclusive approach between autistic patients, their families and healthcare staff. To achieve this, co-design initiatives that incorporate the perspectives and lived experiences of the autistic community are necessary. By placing autistic voices at the forefront of these initiatives, it is hoped that changes are meaningful, relevant and can be sustained.
Understanding the unique hospital experiences and challenges of autistic patients can improve their quality of life and well-being by reducing stress and anxiety during hospitalization, leading to better health outcomes and potentially shorter hospital stays. It can also promote a more positive view of healthcare among autistic individuals, encouraging them to seek medical care when needed and have broader societal impacts such as reducing healthcare costs and improving the overall health and well-being of the population. Autistic patients present a substantial risk of hospital admission due to their associated acute to chronic conditions. Nurses and other medical staff must understand the unique hospital experiences and challenges of autistic patients to improve care and facilitate better hospital experiences.
No patient or public contribution.
探讨影响自闭症患者在医院环境中就医体验的因素。
范围综述。
2021年9月使用CINAHL、Medline和谷歌学术数据库进行了系统的文献检索，并于2023年1月更新。本综述基于Arksey和O'Malley的方法框架（《国际社会研究方法杂志》，8(1):19 - 32, 2005），该框架由系统评价和Meta分析扩展的范围综述的首选报告项目进一步完善。
自闭症患者及其家人和医护人员面临一些可能影响他们在医院环境中就医体验的障碍。在筛选的211篇文章中，30篇符合条件并被纳入。通过我们的综述，我们确定了两个主要主题。第一个主题“医院体验的挑战”包括四个子主题：（1）沟通，（2）自闭症患者的需求与医院环境不匹配，（3）与家长体验相关的挑战，（4）与医院系统相关的挑战。第二个主题“改善医院体验的促进因素”包括三个子主题：（1）提供护理路径，（2）家长与专家之间的合作关系，（3）改善医院系统的促进因素。通过理解这些主题，我们可以努力解决自闭症患者及其家人面临的障碍，同时利用促进因素来改善他们的医院体验。
了解自闭症患者在医院环境中的就医体验至关重要，因为由于他们相关的急性到慢性健康状况，他们有很高的住院风险。此外，护士和其他医务人员必须了解自闭症患者独特的医院体验和挑战，以改善护理并促进更好的医院体验。本综述进一步强调了自闭症患者、其家人和医护人员之间采取协作和包容方法的迫切需求。要实现这一点，纳入自闭症群体观点和生活经历的共同设计举措是必要的。通过将自闭症患者的声音置于这些举措的前沿，希望所做的改变是有意义的、相关的且可持续的。
了解自闭症患者独特的医院体验和挑战可以通过减少住院期间的压力和焦虑来提高他们的生活质量和幸福感，从而带来更好的健康结果并可能缩短住院时间。它还可以促进自闭症患者对医疗保健形成更积极的看法，鼓励他们在需要时寻求医疗护理，并产生更广泛的社会影响，如降低医疗成本和改善总体人群的健康和幸福感。由于相关的急性到慢性疾病，自闭症患者有很高的住院风险。护士和其他医务人员必须了解自闭症患者独特的医院体验和挑战，以改善护理并促进更好的医院体验。
无患者或公众贡献。
