Centre for Addiction and Mental Health, Toronto, ON, Canada.
University of Toronto, Toronto, ON, Canada.
Qual Health Res. 2023 Nov;33(13):1140-1153. doi: 10.1177/10497323231197365. Epub 2023 Sep 29.
Medical assistance in dying (MAiD) was introduced into Canadian federal legislation in 2016. Mental illness as the sole underlying medical condition (MI-SUMC) is currently excluded from eligibility; such exclusion is scheduled to expire on March 17, 2024. Irremediability, capacity, quality of life, autonomy, family involvement, and healthcare system constraints have been debated intensively. Recent studies have not explored the views of family members of persons with mental illness on MAiD MI-SUMC. This study aimed to fill this knowledge gap. Twenty-five Ontario residents who had a loved one with mental illness participated. A persona-scenario exercise was designed to explore participants' views on MAiD MI-SUMC in hypothetical situations. Reflexive thematic analysis was used to analyze the data. A lived experience-advisory panel was engaged throughout the study. Seven themes were developed: Witnessing suffering; A road with barriers and limitations; Societal barriers; The unknowns of mental illness; Individual choices: the life or death that a person wants; MAiD MI-SUMC as an acceptable choice when suffering cannot be relieved with available treatments and supports; and The emotional outcome. Participants constructed their views based on their experience of supporting a loved one with mental illness. MAiD MI-SUMC was perceived as a multifaceted issue, whose acceptability and potential introduction required a concurrent exploration and discussion of the challenges arising due to limitations of the healthcare system, the opportunities and limits to family involvement, and the value of patient autonomy.
医疗辅助死亡(MAiD)于 2016 年被纳入加拿大联邦立法。目前,精神疾病作为唯一的潜在医疗条件(MI-SUMC)被排除在资格之外;这种排除将于 2024 年 3 月 17 日到期。不可挽回性、能力、生活质量、自主性、家庭参与以及医疗保健系统的限制一直是激烈争论的话题。最近的研究尚未探讨精神疾病患者家属对 MAiD MI-SUMC 的看法。本研究旨在填补这一知识空白。有 25 名安大略省居民参加了这项研究,他们的亲人患有精神疾病。设计了一个角色情景练习,以探讨参与者在假设情况下对 MAiD MI-SUMC 的看法。使用反思性主题分析对数据进行分析。在整个研究过程中,都有一个生活体验咨询小组参与。得出了七个主题:目睹痛苦;充满障碍和限制的道路;社会障碍;精神疾病的未知;个人选择:一个人想要的生或死;当现有治疗和支持无法缓解痛苦时,MAiD MI-SUMC 是一种可接受的选择;以及情绪结果。参与者根据他们支持患有精神疾病的亲人的经验来构建自己的观点。MAiD MI-SUMC 被认为是一个多方面的问题,其可接受性和潜在引入需要同时探讨由于医疗保健系统的限制、家庭参与的机会和限制以及患者自主性的价值而产生的挑战。