Suppr超能文献

特色图书馆:特殊兴趣小组图书馆形成路线图。

SIGnature Libraries: A roadmap for the formation of special interest group libraries.

作者信息

Kim Young-Min, Chin Eric M, Fahey Michael, Gelineau-Morel Rose, Himmelmann Kate, O'Malley Jennifer, Oskoui Maryam, Shapiro Bruce, Shevell Michael, Wilson Jenny L, Wiznitzer Max, Aravamuthan Bhooma

机构信息

Department of Neurology and Pediatrics, Loma Linda University, Loma Linda, California, USA.

Department of Neurology and Pediatrics, Phelps Center for Cerebral Palsy and Neurodevelopmental Medicine, Johns Hopkins University School of Medicine, Baltimore, Maryland, USA.

出版信息

Ann Child Neurol Soc. 2023 Sep;1(3):218-227. doi: 10.1002/cns3.20021. Epub 2023 Mar 23.

Abstract

OBJECTIVE

"SIGnature Libraries" channel the dynamism of academic society-based special interest groups (SIG) to systematically identify and provide user-oriented access to essential literature for a subspecialty field in a manner that keeps pace with the field's continuing evolution. The libraries include literature beyond clinical trial data to encompass historical context, diagnostic conceptualization, and community organization materials to foster a holistic understanding of how neurologic conditions affect individuals, their community, and their lived experience.

METHODS

Utilizing a modified-Delphi approach, Child Neurology Society's Cerebral Palsy (CP) SIG ( = 75) administered two rounds of literature submissions and ratings. A final review by an 11-member international advisory group determined threshold ratings for resource inclusion and the library's final structure.

RESULTS

Seventy-nine articles were submitted for the first Delphi round and 22 articles for the second Delphi round. Survey response rates among SIG members were 29/75 for the first round and 24/75 for the second round. The advisory board added additional articles in the final review process in view of the overall project goal. A total of 60 articles were included in the final library, and articles were divided into seven sections and stratified by rating scores. A process for ongoing revisions of the library was determined. The library will be published on the Child Neurology Society website and made publicly accessible.

CONCLUSIONS

The CP SIGnature Library offers learners an unprecedented resource that provides equitable access to latest consensus guidelines, existing seminal datasets, up-to-date review articles, and other patient care tools. A distinctive feature of the library is its intentional large scope and depth, presented in a stratified fashion relative to the consensus-determined importance of each article. Learners can efficiently navigate the library based on individual interests and goals, and the library can be used as core curriculum for CP education.

摘要

目的

“标志性文献库”汇聚了基于学术团体的特殊兴趣小组(SIG)的活力,以系统地识别并提供面向用户的特定亚专业领域重要文献的获取途径,且其方式能跟上该领域的持续发展。这些文献库包含临床试验数据之外的文献,涵盖历史背景、诊断概念化以及社区组织资料,以促进对神经系统疾病如何影响个体、其社区及生活经历的全面理解。

方法

儿童神经病学会的脑性瘫痪(CP)特殊兴趣小组(n = 75)采用改良德尔菲法进行了两轮文献提交和评分。由11名成员组成的国际咨询小组进行的最终评审确定了资源纳入的阈值评分以及文献库的最终结构。

结果

第一轮德尔菲法提交了79篇文章,第二轮提交了22篇文章。特殊兴趣小组成员的调查回复率第一轮为29/75,第二轮为24/75。鉴于总体项目目标,咨询委员会在最终评审过程中增加了其他文章。最终文献库共纳入60篇文章,文章分为七个部分并按评分进行分层。确定了对文献库进行持续修订的流程。该文献库将在儿童神经病学会网站上发布并向公众开放获取。

结论

CP标志性文献库为学习者提供了前所未有的资源,可公平获取最新的共识指南、现有的重要数据集、最新的综述文章及其他患者护理工具。该文献库的一个显著特点是其有意设置的广泛范围和深度,相对于每篇文章经共识确定的重要性以分层方式呈现。学习者可根据个人兴趣和目标高效浏览该文献库,且该文献库可用作CP教育的核心课程。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/dbd0/10550070/7f5661190314/nihms-1902114-f0001.jpg

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