Department of Psychology, Education and Child Studies, Erasmus University, Rotterdam, The Netherlands.
Department of Psychiatry, University Medical Center Utrecht, University of Utrecht, Utrecht, The Netherlands.
Child Care Health Dev. 2024 Jan;50(1):e13185. doi: 10.1111/cch.13185. Epub 2023 Oct 16.
Preterm care involves clinical measures almost exclusively aimed at keeping the preterm alive and ready for discharge from hospital. Children are then enrolled in clinical follow-up care after this stressful period, but mental or specialised care for parents and child is often not embedded in the routine of a neonatal hospital ward and the family is then dependent on institutions for mental health or child health clinics, that is, regular care that is regionally scattered. This study aimed to investigate experiences of parents with regular care and compare them with parents visiting a fixed, specialised, multidisciplinary institute, outside the hospital walls, for preterm follow-up care.
A survey was conducted among 56 parents (regular follow-up care N = 26; multidisciplinary follow-up care N = 30) of children born prematurely. The survey consisted out of items like parents' experiences with follow-up care, like the organisation of care, supportive care, environmental support and experienced stress.
Parents receiving multidisciplinary follow-up care reported higher levels of satisfaction with organisation of care (F = 5.45; p = 0.023) and supportive care (F = 11.69; p = 0.001) than parents receiving regular follow-up care. Also, it was found that the extent of support from the social environment alleviated stress but only in parents receiving regular follow-up care (ß = -0.47; p = 0.016).
The current study findings indicate that experience with follow-up care is valued higher when receiving multidisciplinary care than regular care, and the degree in environmental support alleviates stress in parents receiving regular care.
早产儿护理主要涉及临床措施，目的几乎完全是为了维持早产儿的生命并准备好从医院出院。在这个紧张时期之后，孩子会接受临床随访护理，但针对父母和孩子的心理或专门护理通常不会纳入新生儿病房的常规护理中，家庭随后依赖心理健康机构或儿童健康诊所，即定期的、分散在不同地区的护理。本研究旨在调查父母对常规护理的体验，并将其与在医院墙外固定、专门的多学科机构接受早产儿随访护理的父母进行比较。
对 56 名早产儿父母（常规随访护理组 N=26；多学科随访护理组 N=30）进行了一项调查。该调查包括父母对随访护理的体验，如护理的组织、支持性护理、环境支持和经历的压力等方面的项目。
接受多学科随访护理的父母在护理组织（F=5.45；p=0.023）和支持性护理（F=11.69；p=0.001）方面的满意度高于接受常规随访护理的父母。此外，还发现社会环境的支持程度缓解了压力，但仅在接受常规随访护理的父母中（β=-0.47；p=0.016）。
本研究结果表明，接受多学科护理的父母对随访护理的体验评价更高，环境支持的程度缓解了接受常规护理的父母的压力。
