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[应对患有黏液黏稠症儿童家庭中的疾病问题]

[Coping with illness in families of children with mucoviscidosis].

作者信息

Möllering M

出版信息

Klin Padiatr. 1986 Sep-Oct;198(5):369-73. doi: 10.1055/s-2008-1033891.

Abstract

Utilizing a literature survey we reviewed dates of the intellectual and psychosocial developmental milestones of children suffering from mucoviscidosis. We analyzed the intellectual abilities and social behavior of these children in school as well as their position in the family. The sickness of the child leads to considerable difficulties in intrafamilial communication. The way the patient, the siblings and the parents cope with the sickness is reviewed. We find a changing in self-image of the child as well as changing in self-confidence of the parents, who often react with depression and withdrawal.

摘要

通过文献调查,我们回顾了患有黏液黏稠症儿童的智力和心理社会发育里程碑的日期。我们分析了这些儿童在学校的智力能力和社交行为以及他们在家庭中的地位。儿童患病导致家庭内部沟通出现相当大的困难。我们审视了患者、兄弟姐妹和父母应对疾病的方式。我们发现儿童的自我形象发生了变化,父母的自信心也发生了变化,他们常常表现出抑郁和退缩。

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