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肌炎的数字化方法。

Digital Approaches for Myositis.

机构信息

Department of Internal Medicine 3, Rheumatology and Immunology Friedrich, Alexander University Erlangen-Nürnberg and Universitätsklinikum Erlangen, Erlangen, Germany.

AGEIS, Université Grenoble Alpes, Grenoble, France.

出版信息

Curr Rheumatol Rep. 2023 Dec;25(12):259-263. doi: 10.1007/s11926-023-01119-4. Epub 2023 Nov 14.


DOI:10.1007/s11926-023-01119-4
PMID:37962833
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10754733/
Abstract

PURPOSE OF REVIEW: This article serves as a comprehensive review, focusing on digital approaches utilized in the diagnosis, monitoring, and treatment of patients with idiopathic inflammatory myopathies (IIM). The authors critically assess the literature published in the last three years, evaluating the advancements and progress achieved in this specific domain. RECENT FINDINGS: Remarkable strides have been made in the realm of digital diagnostic support, particularly in image analysis and clinical prediction models, showing promise in aiding the diagnosis of IIM. The field of remote patient monitoring has also witnessed significant advancements, revolutionizing the care process by offering more convenient, data-driven, and continuous monitoring for IIM patients. Various digital tools, such as wearables, video- and voice consultations, and electronic patient-reported outcomes, have been extensively explored and implemented to enhance patient care. Survey studies consistently reveal a high acceptance of telehealth services among patients. Additionally, internet-based studies have facilitated the efficient and rapid recruitment of IIM patients for research purposes. Moreover, the integration of sensors and exoskeletons has shown great potential in significantly improving the functionality and quality of life for individuals with muscle weakness caused by IIM. The integration of digital health solutions in the care of IIM patients is steadily gaining attention and exploration. Although the existing evidence is limited, it does indicate that patients can be adequately and safely supported through digital means throughout their entire healthcare journey. The growing interest in digital health technologies holds the promise of improving the overall management and outcomes for individuals with idiopathic inflammatory myopathies.

摘要

目的综述:本文对使用数字方法诊断、监测和治疗特发性炎性肌病(IIM)患者进行了全面综述,重点关注了这一领域的最新进展。 研究进展:在数字诊断支持方面取得了显著进展,特别是在图像分析和临床预测模型方面,为 IIM 的诊断提供了帮助。远程患者监测领域也取得了重大进展,通过为 IIM 患者提供更方便、数据驱动和持续的监测,彻底改变了护理流程。各种数字工具,如可穿戴设备、视频和语音咨询以及电子患者报告结果,已经得到了广泛的探索和实施,以改善患者的护理。调查研究一致表明,患者对远程医疗服务的接受度很高。此外,基于互联网的研究促进了高效、快速地招募 IIM 患者进行研究。此外,传感器和外骨骼的集成在显著改善因 IIM 导致肌肉无力的个体的功能和生活质量方面显示出巨大的潜力。将数字健康解决方案整合到 IIM 患者的护理中正在受到越来越多的关注和探索。尽管现有证据有限,但它确实表明患者可以通过数字手段在整个医疗保健过程中得到充分和安全的支持。对数字健康技术的日益关注有望改善特发性炎性肌病患者的整体管理和预后。

相似文献

[1]
Digital Approaches for Myositis.

Curr Rheumatol Rep. 2023-12

[2]
Patient-Reported Outcomes in Adult Idiopathic Inflammatory Myopathies.

Curr Rheumatol Rep. 2019-11-19

[3]
[Comprehensive understanding and study on idiopathic inflammatory myopathies to improve its diagnosis and treatment].

Sichuan Da Xue Xue Bao Yi Xue Ban. 2013-9

[4]
Idiopathic inflammatory myopathies: current trends in pathogenesis, clinical features, and up-to-date treatment recommendations.

Mayo Clin Proc. 2013-1

[5]
Contribution of dot-blot assay to the diagnosis and management of myositis: a three-year practice at a university hospital centre.

Clin Exp Rheumatol. 2016

[6]
[Idiopathic Inflammatory Myopathies].

Dtsch Med Wochenschr. 2020-7

[7]
From data to diagnosis: how machine learning is revolutionizing biomarker discovery in idiopathic inflammatory myopathies.

Brief Bioinform. 2023-11-22

[8]
Exercise recommendations for patients with myositis: a narrative review of safety and efficacy.

Clin Exp Rheumatol. 2024-2

[9]
Idiopathic inflammatory myopathies.

Neurol Clin. 2014-8

[10]
Teleconsultation experience with the idiopathic inflammatory myopathies: a prospective observational cohort study during the COVID-19 pandemic.

Rheumatol Int. 2021-1

引用本文的文献

[1]
Social media in advancing equity and collaboration in rheumatology: the CORDIALITY review.

RMD Open. 2025-3-27

[2]
Toward digitally supported self-assessment of patients with idiopathic inflammatory myopathies.

Arthritis Res Ther. 2025-2-22

[3]
Telemedicine for the Care of Patients with Idiopathic Inflammatory Myopathies: Experience, Insights and Future Directions from the International Myositis Assessment and Clinical Studies Telemedicine Scientific Interest Group.

Curr Rheumatol Rep. 2024-12

[4]
[Rheumatological care in Germany : Memorandum of the German Society for Rheumatology and Clinical Immunology 2024].

Z Rheumatol. 2024-8

[5]
Digital Health and Self-Management in Idiopathic Inflammatory Myopathies: A Missed Opportunity?

Curr Rheumatol Rep. 2024-11

本文引用的文献

[1]
Healthcare utilization and unmet needs of patients with antisynthetase syndrome: An international patient survey.

Rheumatol Int. 2023-10

[2]
Rescue therapy of antisynthetase syndrome with CD19-targeted CAR-T cells after failure of several B-cell depleting antibodies.

Rheumatology (Oxford). 2024-1-4

[3]
Stepwise asynchronous telehealth assessment of patients with suspected axial spondyloarthritis: results from a pilot study.

Rheumatol Int. 2024-1

[4]
Global disparities in the treatment of idiopathic inflammatory myopathies: results from an international online survey study.

Rheumatology (Oxford). 2024-3-1

[5]
CD19-targeted CAR T cells in refractory antisynthetase syndrome.

Lancet. 2023-3-11

[6]
Digital health in musculoskeletal care: where are we heading?

BMC Musculoskelet Disord. 2023-3-14

[7]
Pain in individuals with idiopathic inflammatory myopathies, other systemic autoimmune rheumatic diseases, and without rheumatic diseases: A report from the COVAD study.

Int J Rheum Dis. 2023-4

[8]
Driving time-based identification of gaps in specialised care coverage: An example of neuroinflammatory diseases in Germany.

Digit Health. 2023-1-27

[9]
Assessment of quality and reliability of YouTube videos for patient and physician education on inflammatory myositis.

Clin Rheumatol. 2023-5

[10]
Factors Associated With Telemedicine Use Among Patients With Rheumatic and Musculoskeletal Disease: Secondary Analysis of Data From a German Nationwide Survey.

J Med Internet Res. 2023-1-27

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