School of Health and Society, Centre for Human Movement and Rehabilitation, University of Salford, Salford, Greater Manchester, UK.
Department of Neurosciences, Rehabilitation, Ophthalmology, Genetics, Maternal and Child Health, University of Genova, Campus of Savona, Savona, Italy.
Curr Rheumatol Rep. 2024 Nov;26(11):383-391. doi: 10.1007/s11926-024-01157-6. Epub 2024 Aug 8.
This paper explored the potential of digital health in idiopathic inflammatory myopathies (IIMs), with a focus on self-management. Digital self-management technology includes tailored treatment plans, symptom tracking, educational resources, enhanced communication, and support for long-term planning.
After arguing the importance of digital health in IIMs management, from diagnosis until treatment, our literature review revealed a notable gap in research focusing on the efficacy of digital self-management interventions for individuals with IIMs, with no randomised controlled trials or observational studies addressing this topic. Our review further highlighted the significant unmet need for research in self-management interventions for individuals with IIMs. The absence of studies underscores the necessity for collaborative efforts to address this gap and develop personalised, effective strategies for managing IIMs using digital technology. Individuals with IIMs deserve tailored self-management approaches akin to those available for other rheumatic and musculoskeletal diseases.
本文探讨了数字健康在特发性炎性肌病（IIM）中的应用潜力，重点关注自我管理。数字自我管理技术包括量身定制的治疗计划、症状跟踪、教育资源、增强沟通和长期规划支持。
在强调数字健康在 IIM 管理中的重要性后，从诊断到治疗，我们的文献综述发现，针对 IIM 患者的数字自我管理干预措施的疗效研究存在明显差距，没有随机对照试验或观察性研究涉及这一主题。我们的综述还强调了研究 IIM 患者自我管理干预措施的巨大未满足需求。缺乏研究突显了合作努力解决这一差距并利用数字技术为 IIM 患者制定个性化、有效的管理策略的必要性。IIM 患者应采用类似其他风湿和肌肉骨骼疾病的个性化自我管理方法。
