Vieira Gabriel de Deus, Ferreira Zenóbio Cosme Gonçalves, Nóbrega Lucas, Cardoso Francisco Saulo Sampaio, Leal Eduardo Martins, Schlindwein Rachel
Universidade Federal de Santa Catarina, Departamento de Neurologia, Florianópolis SC, Brazil.
Universidade Federal de Santa Catarina, Departamento de Neuropsiquiatria, Florianópolis SC, Brazil.
Dement Neuropsychol. 2023 Nov 10;17:e20230041. doi: 10.1590/1980-5764-DN-2023-0041. eCollection 2023.
Locked-in syndrome is a neurological condition characterized by tetraplegia, mutism, preservation of vertical eye movement, superior eyelid movement, and intact consciousness, making it impossible for the patient to communicate properly. We herein describe a case to analyze the practice of developing a method of communication for a patient with locked-in syndrome. Two communication boards were created, adapted to the Portuguese language, as well as a shortcut to inquire about the physical and emotional patient's well-being. We had difficulty with the initial communication board, due to the patient's low education level, so we adapted a new one to the patient's social context, including a shortcut to inquire about physical and emotional well-being. The communication board had a positive impact on treatment development and the patient's life.
闭锁综合征是一种神经疾病，其特征为四肢瘫痪、缄默不语、保留垂直眼球运动、上睑运动及意识完好，这使得患者无法正常交流。我们在此描述一个病例，以分析为一名闭锁综合征患者开发一种交流方法的实践过程。制作了两个适用于葡萄牙语的交流板，以及一个用于询问患者身体和情绪状况的快捷方式。由于患者教育水平较低，我们在最初的交流板使用上遇到了困难，因此我们根据患者的社会背景调整了一个新的交流板，包括一个询问身体和情绪状况的快捷方式。该交流板对治疗进展和患者生活产生了积极影响。
