Medical Psychology, Hannover Medical School, Hannover, Germany.
Paediatric Endocrinology and Diabetology, Catholic Childrens Hospital Wilhelmstift, Hamburg, Germany.
Fam Med Community Health. 2023 Nov;11(4). doi: 10.1136/fmch-2023-002415.
The COVID-19 pandemic had an impact on everyday life and in general, reduced the health-related quality of life (HRQoL) of adolescents. In this study, we assess the HRQoL of adolescents with type 1 diabetes (T1D) in Germany since the second wave of the COVID-19 pandemic by using self-report and parent-proxy reports, to identify risk factors, to compare to peers and to examine the agreement of HRQoL between parents and their children.
A total of 445 adolescents (12-18 years) and 413 parents participated in an anonymous cross-sectional survey conducted at three German diabetes centres from January 2021 to June 2022. Inclusion criteria were diabetes duration ≥1 year and German-speaking. Teen HRQoL was assessed by using self-report and parent-proxy report versions of the KIDSCREEN-10 index.
The majority of adolescents reported average (75.5%) HRQoL. Approximately 11.3% of teens reported high and 13.2% low HRQoL. Teen's female gender, older age, higher diabetes burden and parental depression symptoms contributed to lower self-reported HRQoL among teens. For parent-proxy reports, increasing diabetes burdens, parental depression symptoms, non-migrant status, high education and ketoacidosis contributed to lower scores on teen HRQoL. The mean scores of the KIDSCREEN-10 index for adolescents did not differ from the German norm. In comparison to healthy peers during the first wave of the pandemic, adolescents in the current study reported higher HRQoL. The overall teen-parent agreement was fair although parents reported significantly lower teen HRQoL than adolescents did.
HRQoL of most adolescents with T1D during the COVID-19 pandemic was average with parents reporting significantly lower scores. Self-reported and parent-proxy-reported HRQoL and the level of agreement due to different perspectives can provide important information for clinical care and intervention planning.
新冠疫情对日常生活产生了影响，普遍降低了青少年的健康相关生活质量（HRQoL）。本研究通过青少年自报和家长代报的方式评估了德国新冠疫情第二波期间青少年 1 型糖尿病（T1D）患者的 HRQoL，以识别风险因素，与同龄人进行比较，并检验父母与子女间 HRQoL 的一致性。
共有 445 名青少年（12-18 岁）和 413 名家长参与了 2021 年 1 月至 2022 年 6 月在德国三个糖尿病中心进行的匿名横断面调查。纳入标准为糖尿病病程≥1 年且为德语使用者。青少年 HRQoL 通过 KIDSCREEN-10 指数的自报和家长代报版本进行评估。
大多数青少年报告了平均（75.5%）的 HRQoL。约 11.3%的青少年报告了高 HRQoL，13.2%报告了低 HRQoL。青少年的女性性别、年龄较大、更高的糖尿病负担和父母的抑郁症状与青少年自报的较低 HRQoL 相关。对于家长代报，糖尿病负担增加、父母抑郁症状、非移民身份、高教育程度和酮症酸中毒与青少年 HRQoL 得分较低相关。青少年的 KIDSCREEN-10 指数平均得分与德国常模无差异。与疫情第一波期间的健康同龄人相比，本研究中的青少年报告了更高的 HRQoL。总体而言，青少年与父母间的一致性为中等，尽管父母报告的青少年 HRQoL 明显低于青少年自报的水平。
新冠疫情期间，大多数青少年 1 型糖尿病患者的 HRQoL 处于中等水平，而父母报告的得分明显较低。自我报告和家长代报的 HRQoL 以及由于不同视角导致的一致性水平可以为临床护理和干预计划提供重要信息。
