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对姑息治疗的认识、态度和信念:来自瑞士意大利语区代表性人群调查的结果。

Awareness, attitudes, and beliefs about palliative care: Results from a representative survey of the Italian-speaking Swiss population.

机构信息

Swiss Paraplegic Research, Nottwil, Switzerland.

Faculty of Health Sciences and Medicine, University of Lucerne, Lucerne, Switzerland.

出版信息

PLoS One. 2023 Nov 28;18(11):e0294807. doi: 10.1371/journal.pone.0294807. eCollection 2023.

Abstract

OBJECTIVE

To understand the knowledge and awareness of palliative care in the Italian-speaking Swiss general population, describing main misconceptions or false beliefs and their relationship with attitudes towards palliative care.

METHODS

Cross-sectional representative population survey (N = 313).

RESULTS

We observed a high awareness of «palliative care,» although it is mainly associated with pain management and the very last days of life. While false beliefs are relatively rare, there is low awareness of goals, targets, and services offered by palliative care. Overall the Italian-speaking Swiss population has a good predisposition towards palliative care, but negative attitudes are more common among those who lack knowledge. More than one-third of respondents are interested in receiving more information about palliative care, especially from their healthcare providers or through dedicated information points.

CONCLUSION AND PRACTICE IMPLICATIONS

Health communication interventions to promote palliative care are needed because there is still significant unclarity about the goals of palliative care, which negatively affects its acceptance. This study instructs on how to intervene specifically in the Italian-speaking part of Switzerland, including what to communicate and how. Further, our findings can inspire similar studies in other Swiss regions or countries that can optimize recognition, knowledge, and understanding and contribute to filling gaps in populations' health service demand and utilization.

摘要

目的

了解意大利语瑞士人群对姑息治疗的知识和认识,描述主要的误解或错误观念及其与姑息治疗态度的关系。

方法

横断面代表性人群调查(N=313)。

结果

我们观察到人们对“姑息治疗”有很高的认识,尽管它主要与疼痛管理和生命的最后几天有关。虽然错误的信念相对较少,但对姑息治疗提供的目标、指标和服务的认识较低。总体而言,意大利语瑞士人群对姑息治疗有较好的倾向,但缺乏知识的人更容易持消极态度。超过三分之一的受访者有兴趣获得更多关于姑息治疗的信息,特别是来自他们的医疗保健提供者或通过专门的信息点。

结论和实践意义

需要进行健康沟通干预以促进姑息治疗,因为人们对姑息治疗的目标仍存在很大的不明确性,这对其接受度产生负面影响。本研究指导了如何在瑞士意大利语区进行具体的干预,包括应传达什么信息以及如何传达。此外,我们的研究结果可以为其他瑞士地区或国家的类似研究提供启示,以优化对姑息治疗的认识、知识和理解,并有助于填补人群对卫生服务需求和利用的差距。

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Nat Med. 2022 Mar;28(3):460-467. doi: 10.1038/s41591-022-01713-6. Epub 2022 Mar 10.
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