• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

肌痛性脑脊髓炎/慢性疲劳综合征的病因归因和感知耻辱。

Causal attributions and perceived stigma for myalgic encephalomyelitis/chronic fatigue syndrome.

机构信息

FernUniversität in Hagen, Germany.

German Association for ME/CFS, Germany.

出版信息

J Health Psychol. 2022 Sep;27(10):2291-2304. doi: 10.1177/13591053211027631. Epub 2021 Jul 9.

DOI:10.1177/13591053211027631
PMID:34240650
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9434257/
Abstract

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a chronic disease with the hallmark symptom of post-exertional malaise. Evidence for physiological causes is converging, however, currently no diagnostic test or biomarker is available. People with ME/CFS experience stigmatization, including the perception that the disease is psychosomatic. In a sample of 499 participants with self-diagnosed ME/CFS, we investigated perceived stigma as a pathway through which perceived others' causal attributions relate to lower satisfaction with social roles and activities and functional status. Higher perceived attributions by others to controllable and unstable causes predicted lower health-related and social outcomes via higher perceived stigma.

摘要

肌痛性脑脊髓炎/慢性疲劳综合征(ME/CFS)是一种慢性病,其标志症状是运动后不适。目前虽然有越来越多的证据表明其具有生理病因,但尚无诊断测试或生物标志物。ME/CFS 患者会受到歧视,包括人们认为这种疾病是心身疾病。在一个由 499 名自我诊断为 ME/CFS 的参与者组成的样本中,我们研究了感知到的污名化,作为感知到的他人归因与对社会角色和活动的满意度降低以及功能状态相关的途径。他人将更多的可控和不稳定的原因归因于 ME/CFS,通过更高的感知污名化,预测了更低的健康相关和社会结果。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0565/9434257/4762076c0f14/10.1177_13591053211027631-fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0565/9434257/4762076c0f14/10.1177_13591053211027631-fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0565/9434257/4762076c0f14/10.1177_13591053211027631-fig1.jpg

相似文献

1
Causal attributions and perceived stigma for myalgic encephalomyelitis/chronic fatigue syndrome.肌痛性脑脊髓炎/慢性疲劳综合征的病因归因和感知耻辱。
J Health Psychol. 2022 Sep;27(10):2291-2304. doi: 10.1177/13591053211027631. Epub 2021 Jul 9.
2
Problems in defining post-exertional malaise.定义运动后不适的问题。
J Prev Interv Community. 2015;43(1):20-31. doi: 10.1080/10852352.2014.973239.
3
The utility of patient-reported outcome measures among patients with myalgic encephalomyelitis/chronic fatigue syndrome.肌痛性脑脊髓炎/慢性疲劳综合征患者中患者报告结局测量的效用
Qual Life Res. 2017 Apr;26(4):913-921. doi: 10.1007/s11136-016-1406-3. Epub 2016 Sep 6.
4
Post-exertional malaise among people with long COVID compared to myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).长新冠患者与肌痛性脑脊髓炎/慢性疲劳综合征(ME/CFS)患者的运动后不适比较。
Work. 2023;74(4):1179-1186. doi: 10.3233/WOR-220581.
5
Children's experiences of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME): a systematic review and meta-ethnography of qualitative studies.儿童慢性疲劳综合征/肌痛性脑脊髓炎(CFS/ME)体验:定性研究的系统评价和荟萃元分析。
BMJ Open. 2017 Jan 13;7(1):e012633. doi: 10.1136/bmjopen-2016-012633.
6
Hope, disappointment and perseverance: Reflections of people with Myalgic encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Multiple Sclerosis participating in biomedical research. A qualitative focus group study.希望、失望与坚持:肌痛性脑脊髓炎/慢性疲劳综合征(ME/CFS)和多发性硬化症患者参与生物医学研究的反思。一项定性焦点小组研究。
Health Expect. 2019 Jun;22(3):373-384. doi: 10.1111/hex.12857. Epub 2019 Jan 10.
7
Why the Psychosomatic View on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Is Inconsistent with Current Evidence and Harmful to Patients.为什么躯体化视角下的肌痛性脑脊髓炎/慢性疲劳综合征与当前证据不一致,且对患者有害。
Medicina (Kaunas). 2023 Dec 31;60(1):83. doi: 10.3390/medicina60010083.
8
Using Communities of Practice Theory to Understand the Crisis of Identity in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME).利用实践社区理论理解慢性疲劳综合征/肌痛性脑脊髓炎(CFS/ME)中的身份认同危机。
Chronic Illn. 2023 Mar;19(1):56-64. doi: 10.1177/17423953211064989. Epub 2021 Dec 6.
9
Review of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: an evidence-based approach to diagnosis and management by clinicians.肌痛性脑脊髓炎/慢性疲劳综合征综述:临床医生基于证据的诊断与管理方法
Rev Environ Health. 2015;30(4):223-49. doi: 10.1515/reveh-2015-0026.
10
Identifying the mental health burden in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) patients in Switzerland: A pilot study.确定瑞士肌痛性脑脊髓炎/慢性疲劳综合征(ME/CFS)患者的心理健康负担:一项试点研究。
Heliyon. 2024 Feb 23;10(5):e27031. doi: 10.1016/j.heliyon.2024.e27031. eCollection 2024 Mar 15.

引用本文的文献

1
"Have you considered that it could be burnout?"-psychologization and stigmatization of self-reported long COVID or post-COVID-19 vaccination syndrome.“你是否考虑过这可能是倦怠?”——自我报告的长期新冠或新冠疫苗接种后综合征的心理化与污名化
BMC Med. 2025 Aug 20;23(1):488. doi: 10.1186/s12916-025-04335-0.
2
What Long COVID investigators can learn from four decades of ME/CFS research.长期新冠研究人员可以从四十年的肌痛性脑脊髓炎/慢性疲劳综合征研究中学到什么。
Brain Behav Immun Integr. 2023 Dec;4. doi: 10.1016/j.bbii.2023.100022. Epub 2023 Sep 7.
3
Impact of the COVID-19 Pandemic and the 2021 National Institute for Health and Care Excellence Guidelines on Public Perspectives Toward Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Thematic and Sentiment Analysis on Twitter (Rebranded as X).

本文引用的文献

1
Medical Care Situation of People with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in Germany.德国肌痛性脑脊髓炎/慢性疲劳综合征患者的医疗保健状况。
Medicina (Kaunas). 2021 Jun 23;57(7):646. doi: 10.3390/medicina57070646.
2
Two-Day Cardiopulmonary Exercise Testing in Females with a Severe Grade of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Comparison with Patients with Mild and Moderate Disease.重度肌痛性脑脊髓炎/慢性疲劳综合征女性患者的两日心肺运动试验:与轻、中度疾病患者的比较
Healthcare (Basel). 2020 Jun 30;8(3):192. doi: 10.3390/healthcare8030192.
3
Human Herpesvirus-6 Reactivation, Mitochondrial Fragmentation, and the Coordination of Antiviral and Metabolic Phenotypes in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.
2019年冠状病毒病疫情及2021年国家卫生与保健优化研究所指南对公众关于肌痛性脑脊髓炎/慢性疲劳综合征看法的影响:推特(现更名为X)上的主题和情感分析
J Med Internet Res. 2025 May 21;27:e65087. doi: 10.2196/65087.
4
Unequal access to diagnosis of myalgic encephalomyelitis in England.在英国,肌痛性脑脊髓炎的诊断机会不平等。
BMC Public Health. 2025 Apr 22;25(1):1417. doi: 10.1186/s12889-025-22603-9.
5
Experienced inclusion and recognition amongst people with spinal cord injury: A comparative study in Norway, The Netherlands, and Australia.脊髓损伤患者中的经历性包容与认可:挪威、荷兰和澳大利亚的一项比较研究。
PLoS One. 2025 Apr 1;20(4):e0306231. doi: 10.1371/journal.pone.0306231. eCollection 2025.
6
Recent research in myalgic encephalomyelitis/chronic fatigue syndrome: an evidence map.肌痛性脑脊髓炎/慢性疲劳综合征的最新研究:证据图谱
Health Technol Assess. 2025 Mar 26:1-78. doi: 10.3310/BTBD8846.
7
Under-Served Groups and Myalgic Encephalomyelitis Research Workshop; Multiple Barriers to Effective Healthcare, Research and Public Participation.服务不足群体与肌痛性脑脊髓炎研究研讨会;有效医疗保健、研究和公众参与的多重障碍
Health Expect. 2025 Apr;28(2):e70214. doi: 10.1111/hex.70214.
8
Possible Racial Disparities in the Diagnosis of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS).肌痛性脑脊髓炎/慢性疲劳综合征(ME/CFS)诊断中可能存在的种族差异。
Int J Environ Res Public Health. 2025 Feb 14;22(2):280. doi: 10.3390/ijerph22020280.
9
Perceived discrimination in fatigue: a qualitative interview study in the SOMA.SOC project.疲劳方面的感知歧视:SOMA.SOC项目中的一项定性访谈研究
Front Sociol. 2025 Feb 5;10:1528312. doi: 10.3389/fsoc.2025.1528312. eCollection 2025.
10
Depressive and anxiety symptoms in current, previous, and no history of ME/CFS: NHIS 2022 analysis.慢性疲劳综合征/肌痛性脑脊髓炎(ME/CFS)现患、既往病史及无病史人群中的抑郁和焦虑症状:2022年美国国家健康访谈调查分析
Qual Life Res. 2025 Mar;34(3):777-787. doi: 10.1007/s11136-024-03854-2. Epub 2024 Nov 23.
人疱疹病毒6型再激活、线粒体碎片化以及肌痛性脑脊髓炎/慢性疲劳综合征中抗病毒和代谢表型的协调
Immunohorizons. 2020 Apr 23;4(4):201-215. doi: 10.4049/immunohorizons.2000006.
4
A Unifying Hypothesis of the Pathophysiology of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): Recognitions from the finding of autoantibodies against ß2-adrenergic receptors.肌痛性脑脊髓炎/慢性疲劳综合征 (ME/CFS) 病理生理学的统一假说:ß2-肾上腺素能受体自身抗体的发现得到认可。
Autoimmun Rev. 2020 Jun;19(6):102527. doi: 10.1016/j.autrev.2020.102527. Epub 2020 Apr 1.
5
Systematic review and meta-analysis of the prevalence of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME).系统评价和荟萃分析慢性疲劳综合征/肌痛性脑脊髓炎(CFS/ME)的患病率。
J Transl Med. 2020 Feb 24;18(1):100. doi: 10.1186/s12967-020-02269-0.
6
The development of a short form of the DePaul Symptom Questionnaire.德保罗症状问卷短式版的编制。
Rehabil Psychol. 2019 Nov;64(4):453-462. doi: 10.1037/rep0000285. Epub 2019 Jul 18.
7
Long Term Follow up of Young People With Chronic Fatigue Syndrome Attending a Pediatric Outpatient Service.对在儿科门诊就诊的慢性疲劳综合征青少年进行长期随访
Front Pediatr. 2019 Feb 21;7:21. doi: 10.3389/fped.2019.00021. eCollection 2019.
8
The Development of the DePaul Symptom Questionnaire: Original, Expanded, Brief, and Pediatric Versions.德保罗症状问卷的发展:原始版、扩展版、简版和儿童版。
Front Pediatr. 2018 Nov 6;6:330. doi: 10.3389/fped.2018.00330. eCollection 2018.
9
The development of an instrument to assess post-exertional malaise in patients with myalgic encephalomyelitis and chronic fatigue syndrome.评估肌痛性脑脊髓炎和慢性疲劳综合征患者运动后不适的工具的开发。
J Health Psychol. 2021 Feb;26(2):238-248. doi: 10.1177/1359105318805819. Epub 2018 Oct 24.
10
Effects of unsupportive social interactions, stigma, and symptoms on patients with myalgic encephalomyelitis and chronic fatigue syndrome.无支持性社交互动、污名化及症状对肌痛性脑脊髓炎和慢性疲劳综合征患者的影响。
J Community Psychol. 2018 Nov;46(8):959-971. doi: 10.1002/jcop.21984. Epub 2018 May 4.