The Royal Children's Hospital and Murdoch Children's Research Institute, Melbourne, Australia.
Department of Paediatrics, Faculty of Medicine, The University of Melbourne, Melbourne, Australia.
PLoS One. 2024 Feb 23;19(2):e0294492. doi: 10.1371/journal.pone.0294492. eCollection 2024.
A diagnosis of cancer impacts the person's physical and mental health and the psychosocial and financial health of their caregivers. While data on the experience of living with cancer is available, there is a dearth of data from persons in low- and middle-income countries (LMICs). The perspectives of other impacted individuals also remain understudied (e.g., bereaved family members), as well as the impact on survivors and their families over time. The objective of this study is to describe the psychosocial and financial impact of cancer on people diagnosed with cancer as a child, adolescent or adult, their families/caregivers, and the family members of those who have died from cancer, in high-income countries (HICs) and LMICs. This study is an observational, descriptive, quantitative study. Data will be collected anonymously via a digital online cross-sectional survey distributed globally by the World Health Organization (WHO) via the LimeSurvey software. Participants will include (a) adults aged 18+ who have been diagnosed with cancer at any age, who are currently undergoing cancer treatment or who have completed cancer treatment; (b) adult family members of individuals of any age with a cancer diagnosis, who are currently undergoing cancer treatment or who have completed cancer treatment; and (c) bereaved family members. Participants will be anonymously recruited via convenience and snowball sampling through networks of organisations related to cancer. Survey results will be analysed quantitatively per respondent group, per time from diagnosis, per disease and country. Results will be disseminated in peer-reviewed journals and at scientific conferences; a summary of results will be available on the WHO website. This study will suggest public health interventions and policy responses to support people affected by cancer and may also lead to subsequent research focusing on the needs of people affected by cancer.
癌症的诊断不仅会影响患者的身心健康，还会影响其照顾者的心理社会和经济健康。虽然有关于癌症患者生活体验的相关数据，但来自中低收入国家（LMICs）的数据却很少。其他受影响人群的观点也很少被研究（例如，失去亲人的家庭成员），以及随着时间的推移对幸存者及其家庭的影响也很少被研究。本研究旨在描述癌症对高收入国家（HICs）和中低收入国家（LMICs）中被诊断为儿童、青少年或成人的癌症患者、其家属/照顾者以及癌症死亡患者家属的心理社会和经济影响。本研究是一项观察性、描述性、定量研究。数据将通过世界卫生组织（WHO）通过 LimeSurvey 软件在全球范围内分发的数字在线横断面调查匿名收集。参与者将包括：（a）任何年龄被诊断患有癌症的 18 岁以上成年人，目前正在接受癌症治疗或已完成癌症治疗；（b）任何年龄癌症诊断患者的成年家属，目前正在接受癌症治疗或已完成癌症治疗；和（c）失去亲人的家庭成员。参与者将通过与癌症相关的组织网络，通过便利抽样和滚雪球抽样进行匿名招募。将根据受访者群体、从诊断到现在的时间、疾病和国家对调查结果进行定量分析。研究结果将在同行评议期刊和科学会议上发表；结果摘要将在世界卫生组织网站上公布。本研究将提出支持癌症患者的公共卫生干预措施和政策应对措施，也可能导致后续研究关注癌症患者的需求。
