Bergers Juno Hk, Wessels-Wynia Hester, Seute Tatjana, Janssens Astrid, van Delden Johannes Jm
Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, Utrecht, Netherlands.
Marketing and Communication, Concern Staff, University Medical Center Utrecht, Utrecht, Netherlands.
J Particip Med. 2024 Mar 4;16:e48573. doi: 10.2196/48573.
Person-centered care (PCC) encourages patients to actively participate in health care, thus facilitating care that fits the life of the patient. Therefore, health care professionals (HCPs) need to know the patient. As part of a broad policy for improving PCC, a digital questionnaire ("We would like to know you") consisting of 5 questions has previously been developed to help HCPs to get to know the patient with the help of patient and staff involvement.
The purpose of this study was to provide insight into the content and aims of the questionnaire to understand its potential and usability.
We conducted a qualitative, retrospective content analysis of patients' answers using NVivo Pro (QSR International). The questionnaire was used in the outpatient neuro-oncology department of a Dutch academic hospital.
Of 374 invited patients, 78 (20.9%) completed the questionnaire. We selected a sample of 42 (54%) of the 78 patients. Patients used a median of 16 (IQR 7-27) words per question, and most answers were easily interpretable. When asked about important activities, social activities, sports, or maintaining a normal life were most frequently mentioned. Patients wrote about fear of the disease, its possible influence on life, or fear of the future in general. Patients wanted HCPs to know about their care and communication preferences or shared personal information. They formulated expectations about effective treatment, communication, and the care process.
The questionnaire seems usable because patients provide interpretable answers that take little time to read, which HCPs can use to personalize care. Our study shows the potential of the questionnaire to help deliver PCC.
以患者为中心的护理（PCC）鼓励患者积极参与医疗保健，从而促进适合患者生活的护理。因此，医疗保健专业人员（HCP）需要了解患者。作为改善PCC广泛政策的一部分，先前已开发了一份由5个问题组成的数字问卷（“我们想了解您”），以帮助HCP在患者和工作人员的参与下了解患者。
本研究的目的是深入了解问卷的内容和目的，以了解其潜力和可用性。
我们使用NVivo Pro（QSR International）对患者的回答进行了定性、回顾性内容分析。该问卷在一家荷兰学术医院的门诊神经肿瘤科使用。
在374名受邀患者中，78名（20.9%）完成了问卷。我们从78名患者中选取了42名（54%）作为样本。患者每个问题的回答中位数为16个词（四分位距7-27），大多数回答易于理解。当被问及重要活动时，社交活动、运动或维持正常生活被提及的频率最高。患者写下了对疾病的恐惧、其对生活可能的影响或对未来的总体恐惧。患者希望HCP了解他们的护理和沟通偏好或分享个人信息。他们对有效的治疗、沟通和护理过程提出了期望。
该问卷似乎可用，因为患者提供的回答易于理解，阅读时间短，HCP可用于个性化护理。我们的研究显示了该问卷在帮助提供PCC方面的潜力。
