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评论:针对晚期痴呆症的有效临终干预措施能被视为符合道德规范吗?

Commentary: Can an effective end-of-life intervention for advanced dementia be viewed as moral?

作者信息

Scheeres-Feitsma Trijntje M, Schaafsma Petruschka, van der Steen Jenny T, van Delden Johannes J M

机构信息

Protestant Theological University Amsterdam Amsterdam the Netherlands.

Department of Public Health and Primary Care Leiden University Medical Center Leiden the Netherlands.

出版信息

Alzheimers Dement (Amst). 2024 Mar 15;16(1):e12531. doi: 10.1002/dad2.12531. eCollection 2024 Jan-Mar.

Abstract

We comment on Dr. Terman's considerations on the moral justification of ceasing assisted feeding and hydration for people with advanced dementia. The core idea of his paper is that an advance directive can solve future dilemmas regarding assisted feeding. We submit that this static instrument is unfit for the complex and dynamic nature of assessing how to deal with refusals to eat, in particular for people with dementia. It overvalues the past in relation to the present situation and leaves no room for the possibility of changing wishes. Moreover, the perspectives of professional caregivers and families are not addressed because the focus is entirely on individual autonomy in early dementia. Multiple perspectives should be considered in interpreting directives and the actual situation in light of the patient's view of life in order to realistically account for what is morally justifiable in care in advanced dementia.

摘要

我们对特尔曼博士关于停止为晚期痴呆症患者提供辅助喂食和补液的道德合理性的考量发表评论。他论文的核心观点是预先指示可以解决未来关于辅助喂食的困境。我们认为,这种静态的手段并不适合评估如何应对拒绝进食这一复杂且动态的情况,尤其是对于痴呆症患者而言。它相对于当前状况过度重视过去,并且没有为改变意愿的可能性留出空间。此外,专业护理人员和家庭的观点未得到探讨,因为关注点完全集中在早期痴呆症患者的个人自主性上。在根据患者的生活观念来解释指示和实际情况时,应考虑多种观点,以便切实地考量晚期痴呆症护理中道德上合理的做法。

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