Kawano Toshiaki, Takase Akihiro, Yasunari Daisuke, Motomura Chikako, Ikeda Masanori, Matsui Teruaki, Ogata Mika, Suzuki Shuichi, Tezuka Junichiro, Nagao Mizuho, Masumoto Natsuko, Yanagida Noriyuki, Ohya Yukihiro
Department of Pediatrics, National Hospital Organization Fukuoka National Hospital.
Okayama University School of Medicine.
Arerugi. 2024;73(2):180-188. doi: 10.15036/arerugi.73.180.
Quality of life (QOL) questionnaires for parents of children with food allergies have been developed in the United States and Europe. However, no original Japanese QOL questionnaire has been developed till date. We aimed to develop an original questionnaire to evaluate the QOL in parents of children with food allergies in Japan.
We collected QOL-related questions from parents of children with food allergies aged 0-15 years, and created a primary questionnaire. Responses to the primary questionnaire were obtained from the parents again, and question items were reduced using factor analysis to create a secondary questionnaire comprising eight items. In addition to the secondary questionnaire, responses to the Food Allergy QOL Questionnaire-Parent Form (FAQLQ-PF) Japanese version, Parent reported Health-Related QOL in children and adolescents (KINDL) and Health-related QOL (SF-8) were obtained from parents to assess the validity of the secondary questionnaire.
A total of 407 parents completed all questionnaires. The secondary questionnaire scores were positively correlated with those of FAQLQ-PF and weakly negatively correlated with the KINDL and SF-8 mental component summary scores. Parents of children with food allergies with ≥3 culprit foods or severe reactions to daily foods, a history of anaphylaxis, and those carrying adrenaline autoinjectors scored higher and had lower QOL.
The developed original questionnaire is a valid QOL questionnaire for Parents of children with food allergies.
美国和欧洲已开发出针对食物过敏儿童家长的生活质量（QOL）问卷。然而，迄今为止尚未开发出原创的日语QOL问卷。我们旨在开发一份原创问卷，以评估日本食物过敏儿童家长的生活质量。
我们从0至15岁食物过敏儿童的家长那里收集了与QOL相关的问题，并创建了一份初步问卷。再次从家长那里获取对初步问卷的回复，并使用因子分析减少问题项目，以创建一份包含八个项目的二次问卷。除了二次问卷外，还从家长那里获取了食物过敏生活质量问卷家长版（FAQLQ-PF）日语版、家长报告的儿童和青少年健康相关生活质量（KINDL）以及健康相关生活质量（SF-8）的回复，以评估二次问卷的有效性。
共有407名家长完成了所有问卷。二次问卷得分与FAQLQ-PF得分呈正相关，与KINDL和SF-8心理成分总结得分呈弱负相关。对≥3种致病食物过敏或对日常食物有严重反应、有过敏反应病史以及携带肾上腺素自动注射器的食物过敏儿童的家长得分较高，生活质量较低。
所开发的原创问卷是一份针对食物过敏儿童家长的有效生活质量问卷。
