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[父母报告的食物过敏儿童生活质量问卷的编制与验证]

[DEVELOPMENT AND VALIDATION OF QUALITY OF LIFE QUESTIONNAIRE FOR CHILDREN WITH FOOD ALLERGY REPORTED BY PARENTS].

作者信息

Yasunari Daisuke, Motomura Chikako, Kawano Toshiaki, Takase Akihiro, Ikeda Masanori, Matsui Teruaki, Ogata Mika, Suzuki Shuichi, Tezuka Junichiro, Nagao Mizuho, Masumoto Natsuko, Yanagida Noriyuki, Ohya Yukihiro

机构信息

Department of Pediatrics, NHO Fukuoka National Hospital.

Okayama University School of Medicine, and Department of Pediatrics, Fukuyama Municipal Hospital.

出版信息

Arerugi. 2024;73(5):406-415. doi: 10.15036/arerugi.73.406.

DOI:10.15036/arerugi.73.406
PMID:39010200
Abstract

OBJECTIVE

No questionnaire aimed at evaluating the quality of life (QOL) of children with food allergies has been developed in Japan. Therefore, this study was aimed at developing a Japanese version of a QOL questionnaire for children with food allergies to be responded to by their parents.

METHODS

A 59-question primary questionnaire was developed for parents of children aged 0 to 15 years who had food allergies. Responses to the primary questionnaire were collected, and question items were reduced using factor analysis. Then, a secondary questionnaire consisting of nine questions was developed. The secondary questionnaire, the Food Allergy Quality of Life Questionnaire - Parent Form (FAQLQ-PF), and the parent-reported questionnaire on health-related quality of life in children and adolescents (KINDL) were administered to parents of children aged 3 to 15 years who had food allergies.

RESULTS

Overall, 342 parents completed all questionnaires. The QOL scores of the secondary questionnaire were significantly correlated to those of the FAQLQ-PF (r=0.765) and weakly correlated to those of the KINDL (r=-0.358). In addition, QOL scores were significantly worse in patients with a history of anaphylaxis, who were prescribed an adrenaline auto-injector, and who were allergic to hen's eggs, cow milk, or wheat.

CONCLUSION

We were able to develop a parent-reported validated Japanese version of the QOL questionnaire for children with food allergies.

摘要

目的

日本尚未开发出旨在评估食物过敏儿童生活质量(QOL)的问卷。因此,本研究旨在开发一个供食物过敏儿童家长填写的日文版生活质量问卷。

方法

为0至15岁食物过敏儿童的家长编制了一份包含59个问题的初始问卷。收集对初始问卷的回答,并使用因子分析减少问题项目。然后,编制了一份由九个问题组成的二次问卷。对3至15岁食物过敏儿童的家长发放二次问卷、食物过敏生活质量问卷-家长版(FAQLQ-PF)以及家长报告的儿童和青少年健康相关生活质量问卷(KINDL)。

结果

总体而言,342名家长完成了所有问卷。二次问卷的生活质量得分与FAQLQ-PF的得分显著相关(r = 0.765),与KINDL的得分弱相关(r = -0.358)。此外,有过敏反应病史、被开了肾上腺素自动注射器以及对鸡蛋、牛奶或小麦过敏的患者,其生活质量得分明显更差。

结论

我们成功开发出了一份经验证的、供家长报告的食物过敏儿童生活质量日文版问卷。

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