Heilemann MarySue V, Lai Jianchao, Cadiz Madonna P, Meza Jocelyn I, Flores Romero Daniela, Wells Kenneth B
School of Nursing, University of California, Los Angeles, Los Angeles, CA, United States.
Department of Social Welfare, Luskin School of Public Affairs, University of California, Los Angeles, Los Angeles, CA, United States.
JMIR Form Res. 2024 Mar 25;8:e55517. doi: 10.2196/55517.
To address needs for emotional well-being resources for Californians during the COVID-19 pandemic, the Together for Wellness/Juntos por Nuestro Bienestar (T4W/Juntos) website was developed in collaboration with multiple community partners across California, funded by the California Department of Health Care Services Behavioral Health Division federal emergency response.
This qualitative study was designed to explore and describe the perspectives of participants affiliated with California organizations on the T4W/Juntos website, understand their needs for web-based emotional health resources, and inform iterative website development.
After providing informed consent and reviewing the website, telephone interviews were conducted with 29 participants (n=21, 72% in English and n=8, 28% in Spanish) recruited by partnering community agencies (October 2021-February 2022). A 6-phase thematic analysis was conducted, enhanced using grounded theory techniques. The investigators wrote reflexive memos and performed line-by-line coding of 12 transcripts. Comparative analyses led to the identification of 15 overarching codes. The ATLAS.ti Web software (ATLAS.ti Scientific Software Development GmbH) was used to mark all 29 transcripts using these codes. After examining the data grouped by codes, comparative analyses led to the identification of main themes, each with a central organizing concept.
Four main themes were identified: (1) having to change my coping due to the pandemic, (2) confronting a context of shifting perceptions of mental health stigma among diverse groups, (3) "Feels like home"-experiencing a sense of inclusivity and belonging in T4W/Juntos, and (4) "It's a one-stop-shop"-judging T4W/Juntos to be a desirable and useful website. Overall, the T4W/Juntos website communicated support and community to this sample during the pandemic. Participants shared suggestions for website improvement, including adding a back button and a drop-down menu to improve functionality as well as resources tailored to the needs of groups such as older adults; adolescents; the lesbian, gay, bisexual, transgender, and queer community; police officers; and veterans.
The qualitative findings from telephone interviews with this sample of community members and service providers in California suggest that, during the COVID-19 pandemic, the T4W/Juntos website was well received as a useful, accessible tool, with some concerns noted such as language sometimes being too "professional" or "clinical." The look, feel, and content of the website were described as welcoming due to pictures, animations, and videos that showcased resources in a personal, colorful, and inviting way. Furthermore, the content was perceived as lacking the stigma typically attached to mental health, reflecting the commitment of the T4W/Juntos team. Unique features and diverse resources, including multiple languages, made the T4W/Juntos website a valuable resource, potentially informing dissemination. Future efforts to develop mental health websites should consider engaging a diverse sample of potential users to understand how to tailor messages to specific communities and help reduce stigma.
为满足加利福尼亚州居民在新冠疫情期间对情绪健康资源的需求,“共同促进健康/携手共创福祉”(T4W/Juntos)网站由加利福尼亚州多个社区合作伙伴共同开发,并由加利福尼亚州医疗保健服务部行为健康司的联邦应急响应资金资助。
本定性研究旨在探索和描述加利福尼亚州各组织参与人员对T4W/Juntos网站的看法,了解他们对基于网络的情绪健康资源的需求,并为网站的迭代开发提供信息。
在获得知情同意并浏览网站后,对由合作社区机构招募的29名参与者进行了电话访谈(2021年10月至2022年2月),其中21名(72%)使用英语,8名(28%)使用西班牙语。进行了六阶段的主题分析,并运用扎根理论技术进行强化。研究人员撰写了反思性备忘录,并对12份访谈记录逐行编码。通过比较分析确定了15个总体代码。使用ATLAS.ti网络软件(ATLAS.ti科学软件开发有限公司)用这些代码标记了所有29份访谈记录。在检查按代码分组的数据后,通过比较分析确定了主要主题,每个主题都有一个核心组织概念。
确定了四个主要主题:(1)因疫情不得不改变应对方式;(2)面对不同群体对心理健康污名化认知不断变化的情况;(3)“感觉像家一样”——在T4W/Juntos中体验到包容感和归属感;(4)“这是一站式服务”——认为T4W/Juntos是一个理想且有用的网站。总体而言,T4W/Juntos网站在疫情期间向该样本群体传达了支持和社区的感觉。参与者分享了网站改进建议,包括添加返回按钮和下拉菜单以改善功能,以及针对老年人、青少年、女同性恋、男同性恋、双性恋、跨性别者和酷儿群体、警察和退伍军人等群体需求量身定制的资源。
对加利福尼亚州该社区成员和服务提供者样本进行电话访谈的定性研究结果表明,在新冠疫情期间,T4W/Juntos网站作为一个有用且易于访问的工具受到好评,但也有人指出一些问题,比如语言有时过于“专业”或“临床”。网站的外观、感觉和内容因其图片、动画和视频以个性化、丰富多彩且吸引人的方式展示资源而被描述为具有吸引力。此外,内容被认为没有通常与心理健康相关的污名,这反映了T4W/Juntos团队的努力。独特的功能和多样的资源,包括多种语言,使T4W/Juntos网站成为有价值的资源,可能有助于传播。未来开发心理健康网站的工作应考虑让不同的潜在用户样本参与,以了解如何针对特定社区调整信息并帮助减少污名。