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在临终关怀中培养关系自主性:一种程序方法和三维决策模型。

Fostering relational autonomy in end-of-life care: a procedural approach and three-dimensional decision-making model.

作者信息

Foo Kar-Fai, Lin Ya-Ping, Lin Cheng-Pei, Chen Yu-Chun

机构信息

Institute of Public Health, National Yang Ming Chiao Tung University, Taipei, Taiwan.

Institute of Public Health, National Yang Ming Chiao Tung University, Taipei, Taiwan

出版信息

J Med Ethics. 2024 Mar 25. doi: 10.1136/jme-2023-109818.

Abstract

Respect for patient autonomy is paramount in resolving ethical tensions in end-of-life care. The concept of relational autonomy has contributed to this debate; however, scholars often use this concept in a fragmented manner. This leads to partial answers on ascertaining patients' true wishes, meaningfully engaging patients' significant others, balancing interests among patients and significant others, and determining clinicians' obligations to change patients' unconventional convictions to enhance patient autonomy. A satisfactory solution based on relational autonomy must incorporate patients' competence (apart from decisional capacity), authenticity (their true desires or beliefs) and the involvement level of their significant others. To that end, we argue that John Christman's procedural approach to relational autonomy provides critical insights, such as the diachronic or socio-historical personhood, sustained critical reflection and his recent explication of the nature of asymmetrical relationships and helpful interlocutors. This study reviews Christman's account, proposes minor modifications and advocates for an integrated three-dimensional model for medical decision-making. Clarifying the relationship among the three elements promotes an ethical framework with a coherent understanding of relational autonomy. This model not only provides a descriptive and normative framework for end-of-life care practice but also reconsiders the nature of the clinician-patient relationship and its normative implications. We further present a case study to illustrate the merits of our proposed model. Altogether, our proposal will help navigate complex medical decision-making, foster trust and negotiate shared values between patients and their significant others, particularly in end-of-life care.

摘要

在解决临终关怀中的伦理困境时,尊重患者自主权至关重要。关系自主性的概念为这场辩论做出了贡献;然而,学者们常常以碎片化的方式使用这一概念。这导致在确定患者的真实意愿、让患者的重要他人有意义地参与进来、平衡患者与重要他人之间的利益以及确定临床医生改变患者非传统信念以增强患者自主权的义务等方面只能给出部分答案。基于关系自主性的令人满意的解决方案必须纳入患者的能力(除决策能力外)、真实性(他们的真实愿望或信念)以及其重要他人的参与程度。为此,我们认为约翰·克里斯曼的关系自主性程序方法提供了关键见解,比如历时性或社会历史人格、持续的批判性反思,以及他最近对不对称关系和有益对话者本质的阐释。本研究回顾了克里斯曼的论述,提出了一些小的修改建议,并倡导一种用于医疗决策的综合三维模型。厘清这三个要素之间的关系有助于构建一个对关系自主性有连贯理解的伦理框架。该模型不仅为临终关怀实践提供了一个描述性和规范性框架,还重新审视了医患关系的本质及其规范性含义。我们还通过一个案例研究来说明我们所提出模型的优点。总之,我们的提议将有助于应对复杂的医疗决策,促进信任,并在患者及其重要他人之间协商共同价值观,尤其是在临终关怀中。

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